- Our health care moderators: Dr. Don S. Dizon, Dr. Rick Boulay, Dr. Merry J. Markham and Dr. Ann Becker-Shutte for their support, participation and guidance.
- Dr. Matthew Katz for helping us write our Tweet Disclaimer, for responding to those first "Wish we had a community for gyn cancer survivors like #bcsm" tweets, and for continued input and guidance.
- The #bcsm community for allowing us to model your community and join in your conversations.
- The Society of Gynecologic Oncologists for supporting this chat and spreading the word about our online community.
- OCNA for welcoming us as a Partner Member and sharing our tweets.
- The gynecologic cancer survivors who have participated in our chats for sharing your experiences and supporting others diagnosed with your disease.
- The health care providers, cancer researchers and organizations who join us from near and far. Your insight is invaluable and your interest in your patients physical and emotional well-being should be mimicked by providers and researchers and organizations everywhere.
In an effort to get your feedback and suggestions we ask you to fill out the #gyncsm survey which can be found at https://www.surveymonkey.com/s/5QNDJ7K
This month's chat was about Advocating for Yourself and Others. We were joined by Globeathon (@globeathon) and ovarian cancer advocate Gwen Harding-Peets (@greenP11). We had 56 participants, 691 tweets in the hour and over 1.5M impressions. The full transcript is available here.
The topics covered were:
T1: How do you personally advocate for your own gyn health, the health of your patients or, as a caregiver/loved one, for others?
T2: What skills & tools do you need to be an effective advocate for yourself or your loved ones in the healthcare system?
T3: What issues in the GYN cancer community do you think we need to draw attention to?
T4A: How can GYN cancer groups, especially #gyncsm & @globeathon, help you better advocate for yourself and others about GYN cancers?
T4B: What are the hurdles & barriers in in advocating for yourself and others & in raising GYN cancer awareness?
T5A: Pls share local/national/global patient advocacy groups you work w/ – include twitter name and/or website & location if you can
T5B: Also share - How are you raising awareness about GYN cancers during this awareness month/year-round?
Next month's chat is on Recurrences and will be held on October 8, 2014 at 9pm EST.
We hope you can fill out our survey.
Cancer Support Community – Open to Options Program http://www.cancersupportcommunity.org/MainMenu/About-Cancer/Treatment/Making-a-Treatment-Decision/Open-to-Options-2/Open-to-Options.html
Starbryge Health Online
@Globeathon brings together people from around the world to #endwomenscancer
Google Alert for #ovariancancer
SHARE national helpline: 866-537-4273 @SHAREing
@OCNA Advocacy at Home, Advocate Leader program & Research Advocate program
Peach Outreach - great advocacy group for endometrial cancer
@OCRF Woman to Woman Program
@OCRF Woman to Woman Program
Survivors Teaching Students Program from @OCNAFoundation for Women's Cancer - Information, Toolkits, Campaigns
#GotTeald someone today!
Volley - Notes to Researchers
@CancerAdvocay Legislative Advocacy Training Modules
Yahoo group: OvarianCancerSupportCommunity
Linda Young Ovarian Cancer Support Program
Joanie Triestman http://joanietri.wordpress.com/
I Have Lynch syndrome http://www.ihavelynchsyndrome.com/
Heidi Bright http://www.heidibright.com/Blog
Study: Half 26-35yr women unable to identify vagina on a diagram
Dispelling the Myths About Palliative Care
See you next month!