Friday, July 25, 2014

Empowering Women in Their Gyn Health

Christina (@btrfly12) and I (@womenofteal) had the pleasure of being a part of the #patientchat today lead by @patientchat (  The topic was Empowering Women in their Gyn Health. We spoke about starting the #gyncsm chat and what we learned from those chats. We also shared information about the symptoms of gyn cancers, screening tests for cervical cancer and the pelvic exam controversy.

The complete transcript can be found here.

We appreciate the opportunity to share information about gyn cancers with the #patientchat audience.


Chemo Angels

A fresh Chapter tips for survivorship

Cancer Care @cancercare
LiveSTRONG @livestrong
Cancer Support Community  @cancersupportcm

The Cancer Olympics Robin McGee

Clinical trials:

Patient Experience  with clinical trial ( not cancer)

HPV information:

Hereditary Cancer Quiz

Gyn Cancer Blog List

Gyn Cancer Symptoms

Symptom Diary

Article – More Than 60% of Ovarian Cancer Patients Do Not Receive Recommended Treatment

Pelvic Exam Articles:
Doctors Group Advises Against Regular Pelvic Exams via @nytimes
The Dispute Over Annual Pelvic Exams via @nytimes
What You Need to Know About New Pelvic Exam Guidelines via @TodayShow
Healthy Women Do Not Need Routine Pelvic Exams via @washingtonpost
Most Women Don’t Need Regular Pelvic Exams via @USNews

Hereditary Cancer Signs blog


Wednesday, July 9, 2014

Demons of the Mind- PTSD and Mental Health Concerns - July 2014 chat

This month we discussed the mental health issues (anxiety, fear, depression, PTSD) that gynecologic cancer survivors may experience and suggested ways to cope with those issues. We were joined by our mental health moderator, Dr Ann Becker-Schutte, as well as a number of other health care professionals and survivors. We had 43 participants total and a total of 582 tweets in the hour. Additional analytics may be found here.

The night's topic questions were:

T1: What are the signs of emotional distress? How do you know when it is time to get additional help?

T2: How often is emotional state discussed during patient visits? Is it asked about during cancer care appointments?

T3a: What situations for you have led to emotional distress? What are some key triggers?

T3b: What do you do that helps you through times of distress? What are some resources?

T4: Once beyond treatment, many survivors continue 2 worry & have feelings that impact daily living.  What can survivors do to cope?

T5: Living with uncertainty of a recurrence is difficult. What have you found helpful?

T6 (1/2): When we connect w/ others impacted by cancer, there is the reality of loss & also guilt re: surviving when others don't.

T6 (2/2): What keeps you connecting? What helps you cope?

If you missed the chat a complete transcript is found here

Our next chat topic is Where to go for support . We hope you can join us on Wednesday, August 13, 2014 at 9pm EST. 

Mental Health Resources: 

American Cancer Society Cancer Treatment & Survivorship Facts & Figures 2012-2013

Communications skills training for health care professionals working with people who have cancer - PubMed 

NCI Fact Sheet Psychological Stress and Cancer      

Cancer Care Support Services

LiveSTRONG Survivor Care and Survivorship Notebook

American Psychosocial Oncology Society

Harvard Health Blog - The mental and emotional challenges of surviving cancer

Dealing with Recurrence | @NOCC_National Education Series Video 

Oncology Nursing Society Study on Cancer Survivors’ Concerns - ONS Connect

Starbrydge Online Health Magazine "Top things to know about recovering from cancer"

Coping Magazine - Cancer PTSD” 

Physical & Mental Health Among Cancer Survivors: Considerations for Long-Term Care & Quality of Life 

Perceived health care provider reaction to patient and caregiver use of online health communities

A literature review of the social and psychological needs of ovarian cancer survivors.

Living With Uncertainty | @NOCC_National Education Series Video

Thank you to everyone who has been using the #gyncsm hashtag and tweeting reminders about our chat.