Sunday, March 12, 2017

Advocating for Gynecologic Oncology Clinical Trials - #Trials4GynCancerNow

The SGO (Society of Gynecologic Oncology) is conducting their Annual Meeting March 12-15, 2017. You can follow research presented at the meeting by following the hashtag #SGOMtg on Twitter. Note that we'll discuss SGO Meeting highlights during our April 12th #gyncsm chat

During their annual meeting, SGO will be conducting a social media campaign to advocate for gynecologic cancer clinical trials. #gynscm is please to support this campaign and we hope you will join us.

There has been a steep decline in the number of clinical trials in gynecologic cancer since the restructuring of the NCI-sponsored cooperative groups in 2012.  Information about the campaign can be found in this SGO document.

You can join us as we support this campaign by tweeting the following starting on Monday, March 13th at 9:35amEST:
Women with #gyncancer deserve progress. Fund trials now @realDonaldTrump #Trials4GynCancerNow @SGO_org

Feel free to send additional tweets using #Trials4GynCancerNow to encourage increased funding of NCI trials. 

Thanks, 

Dee
#gyncsm Co-Founder 

Wednesday, March 8, 2017

Gyn Cancer Health Disparities Chat -March 8th, International Womens Day

Today, March 8th, International Womens Day, we chatted about Gyn Cancer Health Disparities. We were pleased to have a number of new participants join our community for this chat. We had twenty-six participants and over 1.8 million impressions. You may find more analytics here.

For our discussion we used the NCI definition of cancer health disparities "adverse differences in cancer incidence (new cases), cancer prevalence (all existing cases), cancer death (mortality), cancer survivorship, and burden of cancer or related health conditions that exist among specific population groups in the United States. "

Below, please find a sample of the responses to our questions. To read the full transcript please visit this page on Symplur.

T1: What are some of the factors that contribute to cancer health disparities?

  • Lack of access to regular screenings puts underserved groups at a higher risk for developing cancer-related malignancies
  • Medical "literacy." How close you live to healthcare, especially great healthcare, and how willing you are to go there. Also income, health insurance, and how good that insurance is
  • There are historic factors, race, socio-economic, edu, & access, but there's also the not talked about, systemic & provider,
  • Poverty, isolation, lower socioeconomic status, race, ethnicity, lack of insurance, disenfranchised, mental illness
  • Racial/ethnic differences, genetic factors, rural-urban status--both cultural norms spatial access concerns--, socioeconomics
  • Poverty, socioeconomic status, poor education, mistrust of medical profession (warranted in some groups

T2: What are some of the effects of health disparities you see in the experience of gyn cancer diagnosis, treatment, and beyond? 

  • So many ways that disparities rear their ugly heads- delayed diagnosis, inadequate care, inadequate access to supportive care
  • In poorer comms, est 24% of providers admit they don't even discuss CATs or survivorship w/ minorities
  • With cervical cancer and precancer, access to screening and follow-up! when something found definitely impacted by disparities
  • Studies have shown <50% of women w/ ovarian cancer meeting genetic testing criteria, are referred for genetics + differences by race
  • Some women--like those in rural areas-- sometimes don't get regular pap smears leading to later stage at dx and poorer outcomes 
  • Health disparities, particularly with access, results in fewer minorities participating in #clinicaltrials
  • Much of research blames patient Social Determinants Of Health 4 disparities but lack of culturally-appropriate & buy-in providers is definitely a factor


T3: Which populations are most affected by these cancer disparities? What are some groups and resources addressing the issues?

  • Health disparities also exist among LGBT population - summary article by G. Quinn at Moffitt: https://t.co/5eD2xDBk4a
  • Recent disparities data shows African American women as 40% more likely to develop #cervicalcancer
  • Risk for health disparity= anyone! Gyn cancers can be rare, and not all health care systems are created equally knowledgeable.
  • African American women are disproportionately affected by cancer disparities. Esp rates of increase
  • The recent re-adjustment on cervical cancer stats showed disparity greater than thought for African American and Hispanic women 
  • There are also biological factors contributing to disparities in cancer #uterinecancer p53 & USC 

T4: What role does past research play in how disparities arise? What role does future research play in addressing disparities? 

  • Great opportunity to reduce disparities through CBPR and community engaged efforts in addtion to NGOs, NCI, and other orgs
  • Cancer research already limited for women. Diversity within the women studied is a barrier.
  • Researchers should make intentional effort to include diverse populations in studies,not just the patients conveniently available
  • It is on the investigator to include underserved groups - it can't just be a "convenience sample"
  • For historic data to play a role in epidemiology research, data has to be actionable. We need better analyst and data scientist 
  • @SGO_org is launching a campaign around #Trials4GynCancerNow Check the #gyncsm blog heading into next week to support
  • Henrietta Lacks! Highlighting past research transgressions can,hopefully, reduce future disparities, improve trust in research
  • The #CAPfoundation is trying to help with screening in populations underserved populations https://t.co/DpeOQpr867 
  • Researchers can also study ways to change or reduce cancer prevention, diagnosis & tx disparities to help prevent future cancers
  • @mdandersonnews has a department that focuses on how to increase minority involvement in clinical trials and research studies 

T5: How can we work together to address and reduce gyn cancer health disparities in our own communities and beyond?

  • As a @GeneticCouns, while only one person, I help underserved women access counseling and testing
  • continue to raise awareness so that increased funds can be directed toward this issue
  • We know patients of gyn oncs better outcomes. Train more gyn oncs for underserved communities
  • 5 Work to encourage funding 4 GynCa programs that support SDOH initiatives. Insist disparity disruptors get funded
  • Promote #clinicaltrial awareness - Less than 2% of NCI studies have enough minorities to meet NIH goals
  •  Increased collaboration in academia and beyond --partner instead of compete for research/outreach $-->synergistic research etc
  • The @C3Prize seeks answers to these cancer treatment challenges annually. Collaborate on a project. Get it funded.
  • partnering with others who are passionate, like @ShewithLynch to raise awareness of disparities in hereditary cancer
  • hopefully support for physicians to provide telemed might move the needle in that direction to ⬆ access
  • working on a government and health policy level can help reduce health disparities... healthcare in flux=opportunity to improve

We ended out chat as we always do with Today I Learned. Some of today's thoughts were:

  • Final thought. Be brave enough to discuss disparities in professional health comms. Our greatest resource is our resolve to "care"
  • TIL that our community= passionate re: eliminating gyn cancer disparities! We can join together to raise awareness & promote change
  • TIL health Disparities are deep within the fabric of of health care and will require education and active reform. 
  • TIL: The complexity of health disparities is great - but the passion to eliminate these disparities exists and will drive us forward
Please scroll down to find the links to topic resources shared during this chat.

Remember you can always continue the conversation on the Smart Patients Platform ( https://www.smartpatients.com/partners/gyncsm  ).

The SGO Meeting (#SGOMtg) takes place from March 12-15. @SGO_org is launching a campaign around #Trials4GynCancerNow. Check the #gyncsm blog heading into next week to support this effort.

We hope you will join us on April 12, 2017 as we discuss research results reported on at the SGO meeting during our SGO Research Review and ASK the Docs Chat.

See you then.

Dee
#gyncsm Co-Founder


RESOURCES

NCI Cancer Health Disparities Fact Sheet (including cervical cancer overview)
https://www.cancer.gov/about-nci/organization/crchd/cancer-health-disparities-fact-sheet

Approaching Health Disparities From a Population Perspective: The National Institutes of Health Centers for Population Health and Health Disparities https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2509592/
Disparities in Gynecological Malignancies https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4761838/

Racial Disparities in Cervical Cancer, Worse Than We Thought http://onlinelibrary.wiley.com/doi/10.1002/cncr.30501/full

SGO Taskforce Report on Gyn Cancer Disparities https://www.sgo.org/wp-content/uploads/2014/05/Collins-et-al.pdf

CDC Health Disparities and Inequality reports https://www.cdc.gov/minorityhealth/chdireport.html

Cancer and Lesbian, Gay, Bisexual, Transgender/Transsexual, and Queer/Questioning Populations (LGBTQ) https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4609168/

National LGBT Cancer Network @cancerLGBT http://cancer-network.org/
Society of Gynecologic Oncology @SGO_org
National Society of Genetic Counselors @GeneticCouns
@pinkredribbon
http://thelancet.com/series/womens-cancers

NY Times: Wider gap in cervical cancer deaths https://www.nytimes.com/2017/01/23/health/cervical-cancer-united-states-death-toll.html?smid=tw-nytimes&smtyp=cur&_r=2

Cancer Mortality in the Mississippi Delta Region: Descriptive Epidemiology and Needed Future Research and Interventions http://muse.jhu.edu/article/648763

CAP Foundation's "See, Test & Treat" partners with Day of the Latina Woman program in Houston https://www.youtube.com/watch?v=7wysxxdmUAM&feature=youtu.be

Participation in Cancer Clinical Trials - Race-, Sex-, and Age-Based Disparities http://jamanetwork.com/journals/jama/fullarticle/198896

Diversity in Clinical and Biomedical Research: A Promise Yet to Be Fulfilled http://journals.plos.org/plosmedicine/article?id=10.1371/journal.pmed.1001918

NCI launches study of African-American cancer survivors https://www.nih.gov/news-events/news-releases/nci-launches-study-african-american-cancer-survivors

Does equal treatment yield equal outcomes? The impact of race on survival in epithelial ovarian cancerhttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC2612941/

Opportunities and Challenges in Cancer Health Disparities Research
https://www.cancer.gov/research/areas/disparities

In Cancer Trials, Minorities Face Extra Hurdles
https://www.nytimes.com/2016/12/23/health/cancer-trials-immunotherapy.html?_r=1

#SGOMtg
Abstracts https://www.sgo.org/wp-content/uploads/2016/12/SGO-AM17-abstract_titles.pdf
Late-abstracts https://www.sgo.org/education/annual-meeting-on-womens-cancer/annual-meeting-late-breaking-abstracts/
General info https://www.sgo.org/education/annual-meeting-on-womens-cancer/


Friday, March 3, 2017

March 8, 2017 - Gyn Cancer Health Disparities



Healthcare disparities can effect various populations in the U.S. due to a number of reasons - economic, cultural, racial, geographic, age or gender. The National Cancer Institute (NCI) defines cancer health disparities as "adverse differences in cancer incidence (new cases), cancer prevalence (all existing cases), cancer death (mortality), cancer survivorship, and burden of cancer or related health conditions that exist among specific population groups in the United States." Studies have shown that disparities in diagnosis, treatment, access and clinical trial participation impact the lives of women diagnosed with a gynecologic cancer. During this month's #gyncsm chat we will discuss Gynecologic Cancer Health Disparities and ways to reduce them.

Please join us as we discuss this issue using these topic questions:

T1: What are some of the factors that contribute to cancer health disparities?

T2: What are some of the effects of health disparities you see in the experience of gyn cancer diagnosis, treatment, and beyond? 

T3: Which populations are most affected by these cancer disparities? What are some groups and resources addressing the issues?

T4: What role does past research play in how disparities arise? What role does future research play in addressing disparities? 

T5: How can we work together to address and reduce gyn cancer health disparities in our own communities and beyond?


Check this NCI page ( https://www.cancer.gov/about-nci/organization/crchd/cancer-health-disparities-fact-sheet) for more information on Cancer Health Disparities.

See you on March 8th, which is also International Women's Day!
Check here to see the chat time in your local time zone.


New to tweetchats? See:


Dee
#gyncsm Co-Founder

Wednesday, February 8, 2017

HPV and Cervical Cancer Chat - 2/8/17

During this month's chat discussion on HPV and Cervical Cancer the community learned vital information about screening, vaccination, fertility and how to better educate women on the risks and treatment of cervical cancer. We were joined by forty-nine participants and had over 2.4 million impressions.

Here is a sample of the responses to our topic questions.
T1: Which HPV (Human Papilloma Virus) types cause cervical cancer? How does the HPV vaccination prevent cancer? 
  • HPV causes nearly all cases of cervical cancer. While there are over 150 HPV types, ~14 are known to cause cervical cancer.
  • Usually HPV 16 and 18. But several others. Vaccine prevent against many cancer and wart causing types of HPV
  • Just because you are infected with #HPV - doesn't mean that you will DEFINITELY develop #cervicalcancer
  • Because we can't be sure who will develop cancer - best to PREVENT with #HPVaccine
  • It is also important to note that the HPV infection can develop years after exposure
  • @theNCI comprehensive cancer ctrs statement on HPV vaccination tinyurl.com/je8tujx

T2: What other health issues and cancers are associated with HPV? Why is the vaccine recommended for both boys and girls?
  • @GYNcancer :vaccinate both girls & boys between 11- 13 years. 2 doses . Vacc + screening prevent virtually all CervCa
  • Other HPV-related cancers include: vagina, vulva, penis, anus, rectum, and oropharynx (cancers of the back of the throat) 
  • As of 10/2016, CDC recommends that 11-12 year-olds receive 2 doses of HPV vaccine at least 6 months apart instead of 3
  • Cigarette smoking and conditions that lower the immune system like steroids [increase risk]
  • Cervical dysplasia (not yet cancer) can be as emotionally and mentally taxing for young women
  • The best time to vaccinate is well before any sexual skin to skin contact. 

T3: What are the tools we have to catch cervical cancer in the pre-cancer and early stages? What do we need to know re: guidelines? 
  •  If there is concern based on pap and/or HPV test, then colposcopy (a closer look) is done in office.
  •  HPV test should be first test for cervical cancer screening. Detects 14 high-risk HPV types. via @US_FDA
  • Continued importance of pap/HPV screening based on ASCCP guidelines--this and vaccination best way to protect 
  • ACOG infographic on screening acog.org/Patients/FAQs/…
  •  Imp- Guidelines are based on average risk and should be starting point of discussion with your doctor about your personal risk!
T4: What are options for fertility preservation? What fertility and general resources can help women diagnosed with cervical disease? 

T5: There is still a lot of stigma surrounding women's cancers. How can we ensure ALL women receive the necessary education.

  • Take stigma off of HPV as a "sexually transmitted" disease and change to "human contact" 
  • Keep talking about it until it's not a stigma - it's just a health condition to treat!
  • Recent news @NewsHour @DrJenCaudle #cervical cancer kills more african american women http://www.pbs.org/newshour/bb/cervical-cancer-killing-many-african-american-women-thought/ 
  • Australia has implemented school-based vaccination w/ success in vaccine rates and decreased disease
  • It would help if our education about bodies included penis, vagina, ovaries, testes, etc as consistently as we say "elbow."
  • More education programs in junior high and high schools. School vaccination programs 
  • Celebrities with cervical cancer diagnosis speaking out 
  • Organizations like American Indian Cancer Foundation americanindiancancer.org/cervical help educate and raise awareness
  • Organizations like @iamcervivor work to share stories - stories touch emotions and emotion leads to actions
  • Cancer treatment is far worse than the "stigma" of people knowing you're sexually active




Please scroll down for additional resources. To read the entire transcript please click here.

Remember that patients and caregivers are invited to continue our #gyncsm discussions on the Smart Patients platform at https://www.smartpatients.com/partners/gyncsm  .

We invite you to join us next month, Wednesday, March 8, 2017 at 9pm ET for our chat on Gyn Cancer Disparities. 

See you next month! And please use the #gyncsm hashtag to share important information with our community.

Dee
Co-Founder #gyncsm

RESOURCES

@GYNCancer HPV Facts and testing http://www.foundationforwomenscancer.org/educational-materials/cervical-cancer-edmaterials/

@CDCgov has info and resources about #HPV available at     https://www.cdc.gov/hpv/parents/whatishpv.html

ASCCP guidelines available for public http://www.asccp.org/asccp-guidelines

SGO webpage about HPV with good resources sgo.org/hpv/

FDA Resource - Improving odds of cervical health fda.gov/forconsumers/c…

Fertility Preservation in Patients With Cervical Cancer | Cancer Network  http://www.cancernetwork.com/oncology-journal/fertility-preservation-patients-cervical-cancer

#cervicalcancer rates and disparities nytimes.com/2017/01/23/hea…

Time Magazine : Cervical Cancer Rates http://time.com/4643570/cervical-cancer-death-rates-study/

HPV vaccine: A smart way to protect kids from cancer  https://www.mdanderson.org/publications/cancerwise/2013/06/hpv-vaccine-a-smart-way-to-protect-kids-from-cancer.html

How to Talk to Your Kids about HPV https://www.mdanderson.org/publications/focused-on-health/january-2017/HPV-vaccine-talk-to-your-kids.html

Treatments for cervical cell changes: cancer.gov/types/cervical…

Who should be vaccinated against #HPV, and when? Tips from our Dr. Haddad: http://blog.dana-farber.org/insight/2017/01/who-should-get-the-hpv-vaccine/  

Friday, February 3, 2017

Feb. 8, 2017 HPV and Cervical Cancer Chat


While January is officially Cervical Health Month, we're going to continue sharing information and discussing HPV (Human Papilloma Virus), the HPV vaccination, and cervical cancer treatment and survivorship right into February - and beyond.

Cervical cancer forms in the cells lining the cervix. It generally takes several years for normal cells to develop into cervical cancer. The Pap test detects those precancerous cells and the HPV test detects the presence of high-risk HPV types known to lead to cervical cancer.

The most recent numbers available on the incidence of cervical cancer in the U.S. is from 2013. In that year, 11,955 women were diagnosed with cervical cancer (CDC ). The five-year survival rate is 68%. Over the past forty years, death due to cervical cancer has dropped by more than 50% due to the use of the Pap test (http://www.cancer.net/cancer-types/cervical-cancer/statistics).

HPV is responsible for nearly all cases of cervical cancer, with HPV 16 and 18 accounting for more than seventy percent of all cervical cancers. HPV is a very common virus that is transmitted by skin-to-skin contact. Many HPV infections go away by themselves but when they persist they can lead to cervical cancer. Other cancers also associated with HPV include cancer of the vagina, vulva, penis, anus, rectum, and oropharynx (cancers of the back of the throat, including the base of the tongue and tonsils). The goal of vaccination is to prevent a lasting HPV infection after a person is exposed to the virus. (http://www.cancer.net/navigating-cancer-care/prevention-and-healthy-living/hpv-and-cancer)

We hope you will join us and learn more about cervical cancer.

We will use these questions to guide our chat:

T1: Which HPV (Human Papilloma Virus) types cause cervical cancer? How does the HPV vaccination prevent cancer? 

T2: What other health issues and cancers are associated with HPV? Why is the vaccine recommended for both boys and girls?

T3: What are the tools we have to catch cervical cancer in the pre-cancer and early stages? What do we need to know re: guidelines? 

T4: What are options for fertility preservation? What fertility and general resources can help women diagnosed with cervical disease? 

T5: There is still a lot of stigma surrounding women's cancers. How can we ensure ALL women receive the necessary education.

Feel free to read the Cancer.Net website (http://www.cancer.net/cancer-types/cervical-cancer/introduction) and the CDC website (https://www.cdc.gov/cancer/hpv/statistics/cases.htm) for more information on cervical cancer and HPV.

See you on Wed the 8th!

Dee
#gyncsm Co-Founder


Wednesday, January 11, 2017

Young Adults: Life Following a Cancer Diagnosis Joint #gyncsm #mayacc chat January 11,2017

We were so happy to welcome the members of the Metastatic and Young Adult Cancer Community (#mayacc) to our chat on Young Adults: Life Following a Cancer Diagnosis. Thank you Emily Drake (@EK_Drake) for your input and support of the chat.

We had thirty participants and over 1.2 million impressions. You may find the complete analytics here.

After wishing everyone a Happy New Year and giving everyone a chance to introduce themselves we began discussing our topic questions. Some responses to those questions are listed below. To read all the responses, please read our transcript on the Symplur website.

T1: What are some unique aspects of being diagnosed with cancer as a young adult? What are some helpful resources?

  • starting families or relationships, isolation from peers who don't understand, lack of financial stability pre-diagnosis
  • fertility concerns, missing out on typical young adult milestones while friends have babies and travel and get promotions
  • is one of the loneliest things
  • SEX!!! Seriously, my doctors never talk about it (I have to bring it up) but it's a huge part of my wellness.
  • has been my very best resource which has connected me to a community of YA with cancer. So much fun too! 

T2: How much health info do you share w/ family, friends, peers at school/work? What are some of the "labels" you encounter?

  • I didn't share hardly anything at all the first 2 times I had cancer but the 3rd and 4th I just completely lost my filter
  • I overshare, but that's partly bc I'm a as my day job. I also just overshare.
  • Meeting new people over the years I've avoided telling ppl my history bc it seems like a burden on them
  • When I was in college, I didn't tell anyone. I had all my surgeries & radiation during vacations.

T3a: In your experience, do providers discuss and provide resources related to surgical menopause? What's important to know?
  • OMG hot flashes
  • Treating menopause in cancer patients is complex and many providers need education and guidance
  • It seems like the focus is on survival - good thing! - but some quality of life aspects may not always get covered
  • NO! Been in surgical meno for a yr. Most of the research about meno has bn done on women in natural meno. 
T3b: In your experience, do providers discuss and provide resources related to fertility preservation? What's important to know?
  • my HCPs didn't. For women, it costs $$$ & time u might not have.
  • Options for fertility sparing are important to discuss as well - we recommend our pts meet with an Oncofertility specialist
  • We see young women who had no idea that their surgery could put them into menopause. It can be overlooked during counseling 
  • Some of us don't really get counseling on that if we had ER diagnosis and surgery

T4: What is helpful in dealing with the uncertainty cancer brings while still planning ahead?

  • Ask for help!
  • If you can do something about it, do it. If you can't, at least make the story funny
  • Look for an organization for AYA like :
  • And because our young pops are so app savvy, apps like can be very useful
  • Focusing on other parts of life helps but harder as I age and wonder about long term affects

T5: What are some tips for creating balance among the priorities of health, personal life and career/education?

  • I remind my clients all the time we have limited resources: time, energy, finances, etc. It is okay to prioritize resources.
  • Don't let anyone define priority for you. If doing nothing gives you joy & is a priority for YOU, then DO THAT
  • No advice really, but taking things one step at a time helps
  • I try my best to give myself permission to have good days and bad days 

T6: What are some of the roadblocks to working after a cancer diagnosis? 

  • Pain, MD appointments, fatigue. Every new job, I ask for a nap room. I've gotta it twice!
  • Retaining your health insurance should be guaranteed for patients
  • Work can be tricky. In a perfect world, you should be able to state needs and seek accommodation. Not always safe

We ended our chat as we always do by asking participants to share their TIL (Today I Learned).

  • Some other who get it who I'm excited to follow and learn more about! Thanks for sharing
  • TIL from you (who are so kind to share your time, experiences, advice) what life can be like as a young adult w/ cancer-TY!❤
  • TIL Two Twitter communities can share resources and support one another #strongertogether 


Scroll down for Resources shared during the chat.

We invite you to join us next month, Wednesday, February 8, 2017 at 9pm ET for our chat on HPV and Cervical Cancer. 

Remember that patients and caregivers are invited to continue our #gyncsm discussions on the Smart Patients platform at https://www.smartpatients.com/partners/gyncsm

See you next month!

Dee
#gyncsm Co-founder


RESOURCES:

Cancer Epidemiology in Older Adolescents and Young Adults 15 to 29 Years of Age https://seer.cancer.gov/archive/publications/aya/aya_mono_complete.pdf

Dana Farber Young Adult program (@DanaFarberYAP) http://www.dana-farber.org/Adult-Care/Treatment-and-Support/Patient-and-Family-Support/Young-Adult-Program.aspx

Lacuna Loft @LacunaLoft https://lacunaloft.org/

Stupid Cancer @StupidCancer http://stupidcancer.org/

Hope for Young Adults with Cancer
http://www.hope4yawc.org/ @Hope4YAWC

Cancer and Careers @CancerAndCareer

FORCE's @FacingOurRisk eXamining the Relevance of Articles for Young Survivors (XRAYS) program http://www.facingourrisk.org/XRAYS/digest/winter-2016.php

Facebook: Ovarian Cancer Young Survivors Group
https://www.facebook.com/groups/675225689278954/?ref=br_tf

Riding the Cancer Roller Coaster: Survival Guide for Teens and Young Adults
http://www.teen-cancer.com/

Chemo between classes @ChemobtwClasses

Cancer.net @CancerDotNet List of resources for YA
http://www.cancer.net/navigating-cancer-care/young-adults/resources-young-adults

Video: NOCC's Ovarian Cancer Education Series - Living with Uncertainty
https://t.co/fH8WLciMF6

Friday, January 6, 2017

Jan 11,2017 Joint #gyncsm - #mayacc chat Young Adults: Life Following a Cancer Diagnosis


Although not as common, adolescent and young adult women are diagnosed with gynecologic cancers. Ten percent of the cancers diagnosed in young adults (15-29) are cancers of the female reproductive organs. "Nearly all genital system tumors are carcinomas of the cervix, germ cell tumors of the ovary, and carcinomas of the ovary." (Cancer Epidemiology in Older Adolescents and Young Adults 15 to 29 Years of Age) Of the ~14 million people in the United States living with cancer, one in five is under the age of 40. SEER reports that 72,000 adolescents and young adults are diagnosed with cancer each year.

We are pleased to have #mayacc (Metastatic and Advanced Young Adult Cancer Community) join us for our January 11, 2017 9pmET #gyncsm chat on Young Adults: Life Following a Cancer Diagnosis.


Below are the topic questions that will guide our discussion.

T1: What are some unique aspects of being diagnosed with cancer as a young adult? What are some helpful resources?

T2: How much health info do you share w/ family, friends, peers at school/work? What are some of the "labels" you encounter?

T3a: In your experience, do providers discuss and provide resources related to surgical menopause? What's important to know?
T3b: In your experience, do providers discuss and provide resources related to fertility preservation? What's important to know?

T4: What is helpful in dealing with the uncertainty cancer brings while still planning ahead?

T5: What are some tips for creating balance among the priorities of health, personal life and career/education?

T6: What are some of the roadblocks to working after a cancer diagnosis? 

You can learn more about young adult cancers from these two resources and we hope you join the chat to learn more from individuals and groups with a focus on adolescent and young adult cancer.
    If you want to learn more about how to participate in tweet chats you can read this blog post. We will use both #gyncsm and #mayacc hashtags during this month's tweet chat.

    The #mayacc chats are regularly held on 2nd Tuesdays at 9pmET.

    We look forward to having you join us for the joint #gyncsm #mayacc chat on Wednesday, January 11th at 9pmET.

    Dee
    Co-Founder #gyncsm