Tuesday, September 29, 2015

Hereditary Breast and Ovarian Cancer Week

[posted updated 9/2016 and 9/2017]

We as a community have chatted about gynecologic cancer risks, the genetics of cancer (Genetics and Personalized Medicine) and Genetic Counselors and Understanding Gyn Cancer Risk. HBOC week gives us another opportunity to share resources and information on hereditary ovarian and breast cancers.

About 15% of the ovarian cancers diagnosed are due to germline (inherited and passed on to offspring) mutations in the BRCA1 and BRCA2 genes. Having these mutations increases the risk of ovarian cancer by 15-50%. “Nearly one-third of women with hereditary ovarian carcinoma have no close relatives with cancer, and 35% of women with hereditary ovarian carcinoma are older than 60 years at diagnosis”(NCI). 

The Society of Gynecologic Oncology released a Clinical Practice statement in 2014 stating that all women diagnosed with ovarian, tubal and primary peritoneal cancer regardless of age or family history should receive counseling and be offered a genetic test. (https://www.sgo.org/clinical-practice/guidelines/genetic-testing-for-ovarian-cancer/)

FORCE (Facing Our Risk of Cancer Empowered) has played a crucial role in raising awareness, providing information and supporting research into hereditary breast and ovarian cancers. "The goal of HBOC Week and Previvor Day is to raise awareness about hereditary cancer. HBOC Week marks the transition between National Ovarian Cancer Awareness Month and National Breast Cancer Awareness Month and recognizes anyone affected by hereditary breast or ovarian cancer, including women and men with BRCA mutations, people with a family history of cancer, breast and ovarian cancer survivors, and previvors, individuals who carry a strong predisposition to cancer but have not developed the disease."

We hope you find these resources helpful. 

High Risk / Previvor Resources:

BRCA Mutation
Bright Pink
FORCE (Facing Our Risk of Cancer Empowered)
Lynch Syndrome
Cowden Syndrome

National Society of Genetics Counselors http://nsgc.org/
Find a Counselor Tool: http://nsgc.org/p/cm/ld/fid=164

#gyncsm Co-Founder 

Wednesday, September 9, 2015

Gyn Cancer Awareness Month - Spotlight Uterine and Endometrial Cancers September 2015 Chat

We celebrated our Second Anniversary as a community and chat this evening. We were happy to see some familiar faces as well as a few new participants.

This month we discussed Gyn Cancer Awareness Month and we also spotlighted Uterine and Endometrial cancers. We were so pleased to have Lynne Braden, uterine cancer survivor and #GynCAN founder tweeting as @GynCAN join us as well as our own Drs. Boulay, Dizon, Markham and Becker-Schutte.

If you missed this lively chat you may read the transcript here. We had 48 participants and 1,494,578 impressions with 614 tweets in the hour. Analytics may be found here.

Our topic questions and a few responses:

T1: Let’s start with Gyn Cancer Awareness Month #GCAM. What do you wish others knew about your gyn cancer? What are some key points?

T2: Share ways you are raising awareness during #GCAM, everything small to big. Let's replicate great ideas and amplify the message!

T3: What are the #uterinecancer #endometrialcancer risks and symptoms? Survivors, what symptoms did you experience? How diagnosed?

T4: What treatments are used for #uterinecancer #endometrialcancer ? Which side effects have the biggest impact?

T5: Why do you advocate for yourself and others? How has your life changed because of a gyn cancer diagnosis?

Be sure to scroll down for our list of resources shared during the chat. 

Remember you may continue this month's discussion on Smart Patients. (https://www.smartpatients.com/gyncsm

We hope you can join us on Wednesday, October 14, 2015 at 9pmET Topic: Open Mic - Bring your questions/ thoughts. We look forward to seeing you then. 

#gyncsm Co-Founder


Ovarian Cancer Screening http://t.co/jzRJuPWQJx

GYN cancer symptoms via @CDCgov http://t.co/0xRGEPjWMj

@FoundationWomen cancer fact sheet on heredity and Gyn Cancers http://t.co/2DMzuDjcSl

PSA created by @drdonsdizon and @mghcancercenter  

Nobody Has Cancer Blog: http://www.nobodyhasovariancancer.blogspot.com/

Are You at Risk for Uterine or Endometrial Cancer @GYNCancer http://t.co/4boVMlfzIL

Risk Factor Chart http://www.gyncan.com/p/know-your-risk-factors.html

Peach Outreach http://peachoutreach.com/

SGO: Uterine Cancer: Symptoms | SGO https://t.co/IsdqFRzuLW

Medscape Article ( free to join)  In Endometrial Cancer, Lymphadenectomy Down Since 2007

@theNCI : uterine overview http://t.co/mJhfJIMHTd  treatment info: http://t.co/uDjQ65QedI

National Race to End Women's Cancer http://www.endwomenscancer.org/faf/home/default.asp?ievent=1131900

#gyncsm TIL: Today I Learned thoughts: http://t.co/eX9UYFlJGK