We celebrated our Second Anniversary as a community and chat this evening. We were happy to see some familiar faces as well as a few new participants.
This month we discussed Gyn Cancer Awareness Month and we also spotlighted Uterine and Endometrial cancers. We were so pleased to have Lynne Braden, uterine cancer survivor and #GynCAN founder tweeting as @GynCAN join us as well as our own Drs. Boulay, Dizon, Markham and Becker-Schutte.
If you missed this lively chat you may read the transcript here. We had 48 participants and 1,494,578 impressions with 614 tweets in the hour. Analytics may be found here.
Our topic questions and a few responses:
T1: Let’s start with Gyn Cancer Awareness Month #GCAM. What do you wish others knew about your gyn
cancer? What are some key points?
T1: That far more suffer from it that we realize. Talking about anything GYN in public is still so hard for many people.
#gyncsm
— GynCAN - #GynCAN (@GynCAN) September 10, 2015
#gyncsm T1 we try to make women aware of these symptoms pic.twitter.com/JrJcItACoV
— Cervical Screening (@CervicalScreen1) September 10, 2015
T2:
Share ways you are raising awareness during #GCAM, everything small
to big. Let's replicate great ideas and amplify the message!
T2: Working with @WIOvarianCancer @Aurora_Health to spread the word about ovarian cancer in our community #gyncsm
— Elizabeth Dickson (@edicksonMD) September 10, 2015
T2 wearing apparel and jewelry identifying uterine cancer, sharing my personal experiences via fb and instagram via quotes and such #gyncsm
— Gail Rose (@rose_mzrozee) September 10, 2015
T3: What are the #uterinecancer #endometrialcancer risks and symptoms? Survivors, what symptoms did you
experience? How diagnosed?
T3: We need to think of gyn symptoms like we think of a breast lump: Odds are it's nothing, but MAKE SURE IT'S NOT CANCER. #gyncsm
— Robin Martinez (@RobinSmrtPtient) September 10, 2015
T4: What treatments are used for #uterinecancer #endometrialcancer ? Which side effects have the biggest impact?
T4 Almost all uterine and endometrial cancer is treated surgically. WE use minimally invasive approach (robots) to speed recovery #gyncsm
— Rick Boulay,MD (@journeycancer) September 10, 2015
T5: Why do you advocate for yourself and others? How has your
life changed because of a gyn cancer diagnosis?
T5 witnessing ovca pt experiences as an oncology RN made me want to do more, not just give chemo. QoL needed!!! #gyncsm
— Alene Nitzky Ph.D RN (@AleneGoneBad) September 10, 2015
T5: Because survivor sisters are now my friends! The need for awareness & increased funding is so great. #gyncsm
— GynCAN - #GynCAN (@GynCAN) September 10, 2015
Be sure to scroll down for our list of resources shared during the chat.
Remember you may continue this month's discussion on Smart Patients. (https://www.smartpatients.com/gyncsm)
We hope you can join us on Wednesday, October 14, 2015 at 9pmET Topic: Open Mic - Bring your questions/ thoughts. We look forward to seeing you then.
Dee
#gyncsm Co-Founder
Resources
Ovarian Cancer Screening http://t.co/jzRJuPWQJx
GYN cancer symptoms via @CDCgov http://t.co/0xRGEPjWMj
@FoundationWomen cancer fact sheet on heredity and Gyn Cancers http://t.co/2DMzuDjcSl
PSA created by @drdonsdizon and @mghcancercenter
https://audioboom.com/boos/3555368-ovarian-cancer-awareness-month
Nobody Has Cancer Blog: http://www.nobodyhasovariancancer.blogspot.com/
Are You at Risk for Uterine or Endometrial Cancer @GYNCancer http://t.co/4boVMlfzIL
Risk Factor Chart http://www.gyncan.com/p/know-your-risk-factors.html
Peach Outreach http://peachoutreach.com/
SGO: Uterine Cancer: Symptoms | SGO https://t.co/IsdqFRzuLW
Medscape Article ( free to join) In Endometrial Cancer, Lymphadenectomy Down Since 2007
http://www.medscape.com/viewarticle/850658
@theNCI : uterine overview http://t.co/mJhfJIMHTd treatment info: http://t.co/uDjQ65QedI
National Race to End Women's Cancer http://www.endwomenscancer.org/faf/home/default.asp?ievent=1131900
#gyncsm TIL: Today I Learned thoughts: http://t.co/eX9UYFlJGK
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