Looking Back, Looking Forward Chat - December 14, 2022

We invite you to join the #gyncsm community as we close out our 2022 chat series. On December 14th our topic will be Looking Back, Looking Forward - a chat topic we have not covered since December 2015. We will use our one-hour time slot to reflect back on 2022 and share our goals heading into 2023 - for ourselves, for gyn cancer advocacy, and for the #gyncsm community. We continue to monitor and assess our Twitter-based Community under the new ownership of Twitter and will include that in our discussion. Here's our six Topic questions:

T1: What are some things you did in 2022 that brought you satisfaction? What steps have improved your overall quality of life?
T2: Is there something you wish you did differently this year? Do you have plans to try something new in 2023?

T3: What are some of the "wins" for gynecologic cancer advocacy/treatment/care over the past year or so? Where are we seeing progress?
T4: What are some areas within the gynecologic cancer space that you want to see more progress made over the next year? Any projects/action steps you already have planned?

T5: What are some of the things you appreciate about the #gyncsm community being on Twitter? What do you find helpful about #gyncsm?
T6: What are your plans for staying or leaving Twitter? Which other platforms have you tried or are you considering? Any thoughts on the future of #gyncsm and what you'd like to see?

We hope you can join us at 8pm ET on Wednesday, December 14th and share your thoughts. 

Interested in what might come next for #GYNCSM post-Twitter? Join the #gyncsm mailing list: HERE

Dee and Christina 

#gyncsm Co-founders

TIL - What We've Learned in the Past Year

If you have joined us for any of our chats you know that for the last ten minutes or so of each chat we ask participants to complete the phrase, Today I learned... which we fondly call TIL.

Since we celebrated our third anniversary this month, we thought we would share some of those completed phrases from each of the past year's chats.

September 2015 Gyn Cancer Awareness Month - Spotlight Uterine and Endometrial Cancers
TIL if even one woman with symptoms reads this tweet chat & goes to doctor as a result.... I'll be a happy person @darlakbrown

TIL to remember the importance of education for women,men on gyn cancers, starting in the schools. To Advocate for that too. & more @alenegonebad


October 2015 Open Mic
TIL U can get patients,survivors,researchers,docs in tweet chat room with no planned ?'s & they can have imp insightful conversation @womenofteal

TIL what a wide range of concerns and knowledge women bring with them to #gyncsm @robinsmrtptient


November 2015 Nutrition and Exercise
TIL: @DanaFarber has a nutrition app! @livestrong

Remember to take nutrition and exercise like anything else: some days will be better than others @edicksonmd


December 2015 Looking Back and Looking Forward
TIL: Self care is essential to be able to care for others @shannonwestin

TIL ( but really knew already) GYNCSM is a great group committed to advocacy and education for women's cancer survivors @journeycancer


January 2016 Taking Care of our Caregivers
TIL: Caregivers and patients share feelings of guilt about taking _needed_ time for breaks and self-care. @drbeckershutte

TIL: Just as important to care for the caregiver as it is to care for the patient - best chance for success! @shannonwestin


February 2016 Rare GYN Cancers: Vulvar, Vaginal and Fallopian Tube
TIL Just a reminder from my side of things: Having any rare cancer can be especially scary and isolating because you lack mentors. @drbeckershutte

TIL Advocacy for each gynecologic cancer is stronger when we work together. Thanks all for coming and learning tonight. @btrfly12


March 2016 Genetic Counselors and Understanding GYN Cancer Risk
TIL Knowing that gen counselors have this valuable info could help many patients who may not know/think of that resource. @robinsmrtptient

Genetics is an integral part of cancer prevention. Know your genetics. Get to know a GC. @GeneticCouns @maryfreivogel


April 2016 Re-envisioning Ovarian Cancer Survivorship
TIL I learned how important it is to have discussions surrounding treatment & aftercare so women can learn from each other. #gyncsm #BWSU @blkwomenstandup

TIL: Keep placing personal QOL needs front & center while supporting pts in decision-making. Real needs more valuable than paper @cbushrn


May 2016 Getting Social with your Health
TIL that those dx with cancer can use Social Media to feel connected, learn information, learn what ?'s to ask and support others #gyncsm @womenofteal

TIL about ASCO's COSMO initiative but was unsurprised to see that they still are struggling with quality of life as an outcome #gyncsm @alenegonebad


June  2016 What’s New in GYN Cancer Research
TIL there are oppty for pts to give input to clinical trials. Want to learn more about that and how to connect pts w those opptys @elisabethcramer

TIL: progress, but more work to be done, excited to be able to use FDA approved drugs for disease sites, luv survivorship data @crmillergo


July 2016 Spirituality and Quality of Life
TIL, from a very insightful community, what spirituality means & how others embrace & develop it, esp in challenging times @embosu

TIL (again/as ever) that virtual community is REAL community. I was so tired and pained today. Feel so much better now, thank you! @meredithgould


August 2016 Shared Decision Making and Patient-Centered Care
TIL: #SDM and #PCC are really like "Stone Soup" - everyone needs to put something in! @robinsmrtptient

TIL: PCC is a process, and we can encourage SDM through listening, mutual education, asking more questions @embosu


September 2016 Gyn Cancer Advocacy and #GYNCSM Goals/Aspirations
TIL that time flies, with tweet chats as well as kids. How can it be three years already? And that there is so much more to do. @drbeckershutte

TIL: (knew) How special Dee and Christina for creating this wonderful community - now we need to reach more gyn cancer survivors!  @shannonwestin

Thank you everyone who has joined us during the past year. We look forward to learning and growing in the year ahead.

Dee and Christina 
#gyncsm Co-founders

Note - View our CHAT TOPICS page (found via main top menu) to find recaps of each of our chats with links to the full transcripts.