February 13, 2019 - Getting Into Clinical Trials Chat

During the past few years our community has talked about Clinical Trials a number of times. We talked about different types of clinical trials, how clinical trials have changed, new trial designs - such as basket trials and the @ASCO TAPUR trial - and the inclusion of Patient Reported Outcomes in clinical trials. A theme that kept repeating during these chats was the difficulty gyn cancer patients had in finding clinical trials they could enroll in. So this month #gyncsm will spend time talking about Getting Into a Clinical Trial. 

Prior to the chat, we encourage you to review these resources

Lilly's TrialGuide Blog
https://blog.lillytrialguide.com/

Clara Health's Step by Step Guide to Finding and Participating in Clinical Trials https://guides.clarahealth.com/how-to-find-and-participate-in-clinical-trials/

and watch this video from The Foundation for Women's Cancer

Understanding Clinical Trials

Guiding our discussion will be the following Topic Questions (T:)

T1: Before looking for trials, what information do patients need? What is helpful to consider/decide ahead of time?

T2: Where can patients search for trials? What key words are helpful? Are there specific search sites for gyn cancers?

T3: What should patients look for in a trial? Where can patients get help on the terminology used in trial listings? What are eligibility criteria?

T4: When contacting the study team, what questions are important to ask? What factors need to be considered?

T5: How can patients best prepare for the onsite interview? What is a study protocol? What is informed consent?

T6: What advice do you have for patients who are choosing between trials when there are several options?

Bonus Topic - time permitting: Outside of eligibility criteria, what kept you or a patient you know from enrolling in a trial? How are trials changing to reduce trial participation barriers?

Invite your friends and join us on February 13, 2019 at 9pm ET (8pm CT, 6pmPT) for an informative discussion. We will have a number of researchers and clinical trial experts joining us. 

See you then.

Dee 

#gyncsm Co-Founder