Friday, February 5, 2016

Rare Gyn Cancer Chat - February 10, 2016

February 29th is Rare Disease Day. In the past, we have tweeted about Rare Disease Day (#RareDiseaseDay) as well as shared information about the day on our blog (here and here). A disease is rare in the U.S. if the "disease or disorder ... affects fewer than 200,000 Americans at any given time." (

The mission of #gyncsm is to support those impacted by all gynecologic cancers. One way we can do this is to offer information on rare gynecologic cancers and support survivors of those cancers. On February 10, 2016 we will be discussing Vulvar, Vaginal and Fallopian Tube cancers. 

An estimated 5,000 women in the U.S. will be diagnosed with Vulvar cancer in 2016. In 2015, it was estimated that 4,070 women would be diagnosed with Vaginal cancer. Around 300 to 400 women are diagnosed annually in the U.S. with Fallopian Tube cancer.  

Join us as we discuss these diseases. The topic questions are:
T1: What are some of the key things to know about vulvar cancer - risks, symptoms, treatments, etc.?

T2: What are some of the key things to know about vaginal cancer - risks, symptoms, treatments, etc.?

T3: What are some of the key things to know about fallopian tube cancer - risks, symptoms, treatments, etc.?

T4: There is a suspected relationship between the fallopian tubes and ovarian cancer. What is the latest research showing?

T5: How does the treatment of these cancers differ from that of other GYN cancers (ovarian/cervical/uterine)?

T6: Since these cancers are so rare, where can those impacted by vulvar, vagina, and tubal cancers find information and support? 

To prepare for the chat you may check these resources from
Vulvar cancer:
Vaginal cancer:
Fallopian Tube cancer:

We hope you will join us as we raise awareness of the risks of these rare gynecologic cancers, support the women impacted by them, and support the clinicians and researchers who focus on treating these rare cancers. We look forward to your participation in this important discussion on February 10th at 9pm ET (8pm CT/ 6pm PT)

#gyncsm co-moderator

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