February 28, 2014 - Rare Disease Day

Did you know that some gynecologic cancers are considered rare diseases? The NIH's Office of Rare Diseases Research considers Ovarian, Uterine, Endometrial, Fallopian tube, GTD (Gestational Trophoblastic Disease), Vaginal and Vulvar cancers as rare diseases.

Because of those designations as rare diseases #gyncsm has joined with over 190 organizations through out the world to become a Friend of Rare Disease Day. Rare Disease Day is February 28, 2014. This year's theme is Care: Join Together for Better Care . The rare disease website says "Considering rare diseases from an international perspective is also essential to send a strong message of hope to the millions of rare disease patients and families throughout the world who can break their isolation through a vast, united international network of solidarity. This year Rare Disease Day encourages us to continue finding ways to work together to provide the different kinds of care that people living with a rare disease need."

To see the face of Rare Disease Day please watch this video.



We will be using @gyncsm and #gyncsm to help spread the word about Rare Disease Day.

For more information just click on the logo to the right to be taken to the Rare Disease Day web page.


Dee
Co-moderator