Wednesday, August 12, 2015

Dealing with Side Effects - August 12,2015 Chat

A wealth of information and support was shared during the night's chat on Dealing with the Short and Long Term Side Effects of Gynecologic Cancer Treatment. The lively chat included twenty-five participants including Dr. Matthew Katz, Dr. Anne Becker-Shutte and Dr. Elizabeth Dickson.
We had over 999,000 impressions with 15 tweets per participant.

Here are the questions that guided our chat and a sample of responses.
T1: Let’s start w/ surgery side effects...  Which affected you most? Which do patients say are most impactful? Tips to address?

T2: Now let's talk about chemo. What were your side effects? Which are common? How aware of side effects are patients before start?

T3: What are some of the side effects of radiation? Which did you experience? What are patients most concerned about?

T4: For targeted therapy (TT) - Oliparib, Avastin, etc. - what are the side effects? Different from chemo?

T5: What side effects persist? Have you talked to your provider about them? Other side effects we haven't covered so far?

T6: What impacts are you willing to deal with to get more effective treatment? Have we seen changes in how side effects are managed?

To read the complete transcript visit Symplur here.

Remember if you are a patient or caregiver you can join us and continue the conversation on the Smart Patients Platform at 

Our September chat will mark our 2nd anniversary as a health care chat and community on Twitter. We hope you can join us on Wednesday September 9 at 9pm EST . Our topic that night will be Gyn Cancer Awareness Month - Spotlight on Uterine/Endometrial Cancer. 

And as the song goes "See you in September..." .

#gyncsm co-moderator

Resources mentioned during the chat:

Insights Into Preferences for Psycho-Oncology Services in Women With GYN Cancer Following Distress Screening:

Hair Loss: Research with DigniCap presented at #ASCO15

Infographic from @NOCC_Illinois

How To Deal With Surgical Menopause? Helpful questions & answers

The #NCCN Patient Guidelines for Ovarian Cancer

Complementary and Alternative Medicine - National Cancer Institute

Side Effects of Radiation Therapy via ACS:

Radiation Therapy from the Foundation for Women's Cancer @GYNCancer

Specific cancer information from SGO Patients, Caregivers and Survivors | SGO

Overview page per side effect from @PRPCancerGuide and downloadable guide

Long-term side effect info from @cancerdotnet

Additional Resources on Side Effects:

Radiation oncology:  @RWJMS

Foundation for Women's Cancer 

Coping with Side Effects:

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