We had over 999,000 impressions with 15 tweets per participant.
Here are the questions that guided our chat and a sample of responses.
T1: Let’s start w/ surgery side effects... Which affected you most? Which do patients say are most impactful? Tips to address?
T1: via MS @smartpatients “worst part of surgery was the pain meds after and the side effects of those, constipation” #gyncsm— Women of Teal (@womenofteal) August 13, 2015
@edicksonMD: T1: Re pain meds: ask your provider for alternatives to pain medication. Advances in local pain control are happening!! #gyncsm— Elizabeth Dickson (@edicksonMD) August 13, 2015
T2: Now let's talk about chemo. What were your side effects? Which are common? How aware of side effects are patients before start?
#gyncsm extreme nausea, shortness of breath, changes in mental status/chemobrain, extreme fatigue constipation fear shakiness anxiety— Denise Archuleta (@Servivorgirl) August 13, 2015
T2: adjusting support meds and even dosing or schedule of chemo drugs can help with side effects. Discuss with your doctor #gyncsm— Elizabeth Dickson (@edicksonMD) August 13, 2015
T3: What are some of the side effects of radiation? Which did you experience? What are patients most concerned about?
@gyncsm T3: Depends upon treatment type, external beam or brachytherapy, and location of treatment #gyncsm— Matthew Katz (@subatomicdoc) August 13, 2015
T4: For targeted therapy (TT) - Oliparib, Avastin, etc. - what are the side effects? Different from chemo?
T4: there can be high blood pressure and skin issues with targeted therapies #gyncsm— Christina Lizaso (@btrfly12) August 13, 2015
T4: Many targeted therapies are still being studied. Whole side effect profile may not be known. Make sure to ask questions #gyncsm— Elizabeth Dickson (@edicksonMD) August 13, 2015
T5: What side effects persist? Have you talked to your provider about them? Other side effects we haven't covered so far?
@btrfly12 #gyncsm My PCP manages most of the side effects but requires a lot of communication. I am 6 years out OC, praise God— Denise Archuleta (@Servivorgirl) August 13, 2015
T6: What impacts are you willing to deal with to get more effective treatment? Have we seen changes in how side effects are managed?
To read the complete transcript visit Symplur here.T6: excellent question and one as individual as each woman fighting cancer. Only you know the answer and what is right for you #gyncsm— Elizabeth Dickson (@edicksonMD) August 13, 2015
Remember if you are a patient or caregiver you can join us and continue the conversation on the Smart Patients Platform at https://www.smartpatients.com/gyncsm.
Our September chat will mark our 2nd anniversary as a health care chat and community on Twitter. We hope you can join us on Wednesday September 9 at 9pm EST . Our topic that night will be Gyn Cancer Awareness Month - Spotlight on Uterine/Endometrial Cancer.
And as the song goes "See you in September..." .
Resources mentioned during the chat:
Insights Into Preferences for Psycho-Oncology Services in Women With GYN Cancer Following Distress Screening: http://t.co/7Lb70v9UeZ
Hair Loss: Research with DigniCap presented at #ASCO15 http://t.co/GF5MSXbSb2
Infographic from @NOCC_Illinois https://t.co/fJpNGSBnKh
How To Deal With Surgical Menopause? Helpful questions & answers http://t.co/Xz9UloxXjl
The #NCCN Patient Guidelines for Ovarian Cancer http://t.co/QMxTSiFOTG
Complementary and Alternative Medicine - National Cancer Institute http://t.co/fZuf5f4aMN
Side Effects of Radiation Therapy via ACS: http://t.co/P2ma187CqM
Radiation Therapy from the Foundation for Women's Cancer @GYNCancer http://t.co/2NfK8BvZGQ
Specific cancer information from SGO Patients, Caregivers and Survivors | SGO https://t.co/6pRgApbwyp
Overview page per side effect from @PRPCancerGuide and downloadable guide http://t.co/vMnLWw7ScR
Long-term side effect info from @cancerdotnet http://t.co/nymF9z7fW9
Additional Resources on Side Effects:
Radiation oncology: @RWJMS
Foundation for Women's Cancer
Coping with Side Effects: