Clinical Trials Revisted - February Chat

We had such a informative chat about clinical trials in November that we decided to continue the discussion this month. Last night during the hour chat 44 participants logged over 400 tweets using the #gyncsm hashtag. We expanded our previous discussion of barriers to clinical trial participation and brainstormed ideas to increase patient participipation such as  " @rzeiger: T1: frame #clinicaltrials as treatment options, not just as "experiments"" and" @JFreemanDaily: T1: I'd like to see a new medical specialty, perhaps among nurses: "clinical trial navigator" at each hospital". We also discussed how trials are funded, designing clinical trials for rare diseases ( where the number diagnosed with the disease is low),  and the impact personalized medicine and genetics will have on trial design.

The complete transcript can be found here.

Next Chat: March 12, 2014 9pm EST
Topic: Caregivers/ Family Impact

Resources:

Daily aspirin use 'reduces ovarian cancer risk by 20%' 

http://www.medicalnewstoday.com/articles/272387.php

Doctors say too few cancer patients enroll in studies 

http://medicalxpress.com/news/2014-01-doctors-cancer-patients-enroll.html

Clinical trials: My next good chance 

http://scopeblog.stanford.edu/2012/04/17/clinical-trials-my-next-good-chance/

Three Ways to Improve Clinical Trials through Crowdsourcing 

http://connection.asco.org/Commentary/Article/ID/3762/Three-Ways-to-Improve-Clinical-Trials-through-Crowdsourcing.aspx

Why I’m in a Clinical Trial 

http://grayconnections.wordpress.com/2013/11/03/why-im-in-a-clinical-trial/

Affordable Care Act requires insurers to cover clinical trials 

http://www.oncologypractice.com/oncologyreport/news/top-news/single-view/affordable-care-act-requires-insurers-to-cover-clinical-trials/4f568787781a84c3af7c928afec97556.html

Meeting the Challenges to Hereditary Cancer Research 

http://facingourrisk.wordpress.com/2013/10/02/meeting-the-challenges-to-hereditary-cancer-research/

Clinical Trials 101 

http://www.bcsmcommunity.org/clinical-trials-101/

ASCO Answers: Clinical Trials Coverage Through the Affordable Care Act 

http://www.cancer.net/sites/cancer.net/files/clinical_trials_coverage_aca_fact_sheet.pdf?et_cid=33278464&et_rid=463568882&linkid=Clinical%20Trials%20Coverage%20Through%20the%20Affordable%20Care%20Act

Smart Patients Trial Finder 

https://www.smartpatients.com/trials

ClinicalTrials.gov Trial Finder 

http://clinicaltrials.gov/

ASCO Podcast "What are Clinical Trials?" 

http://www.cancer.net/blog/2014-02/what-are-clinical-trials

Making Clinical Trials More Efficient, Informative, and Effective 

http://www.mskcc.org/blog/making-clinical-trials-more-efficient-informative-and-effective

See you next month,

Dee
Co-moderator