#gyncsm Community: #gycsm

Friday, February 23, 2024

The #gyncsm Community Partners with Smart Patients

We are proud to share information about our renewed partnership with Smart Patients, an online peer-to-peer support forum for patients and their families. This partnership will allow our community to extend its ability to help those impacted by gynecologic cancer by adding virtual social and emotional support to our current presence and chat on X (formerly Twitter). Patients and families affected by gynecologic cancers can join the Smart Patients gynecologic community for free to share, interact and learn from each other in a safe, supportive environment.

Patients/family members are invited to join the gynecologic cancer community through this link: Smart Patients GYNCSM Community. Individuals can join the community by securely sharing their email addresses and setting up a free personal account. Once the account is confirmed participants will have access to information and resources and be able to participate in community conversations on topics of interest.

Smart patients is an online community where patients and their families affected by a variety of illnesses learn from each other about treatments, side effects, clinical trials, and how it all fits into the context of their experience. While providing patients with safe and high-quality peer support, they help the healthcare system learn from patients in order to serve them better.

Follow Smart patients on these platforms:

Facebook: /smartpatientscommunity

X: @smart_patients

Instagram: @smart_patients_community

We look forward to seeing you on Smart Patients and at our next chat, March 13, 2024 at 8pm on X.

Dee and Christina

Happy New Year !

January is Cervical Cancer Awareness Month so we decided that this month's chat topic would be cervical cancer. Some of the topics we discussed were symptoms and diagnosis, the stigma of the disease, fertility issues, HPV and the HPV vaccine. We were pleased to have Tamika Felder, survivor and founder of Tamika and Friends and Katie Brown survivor and Director of Support and Advocacy for Lungevity share their experience with us.

We had 33 participants, 379 tweets and over 980,000 impressions. A transcript from the chat can be found here.

Next chat: Clinical Trials Continued - Wednesday, February 12, 2014 at 9pm EST

Resources:

Cervivor - a community, a learning tool, an advocacy resource, and an online retreat for healing, connecting and thriving.

http://cervivor.org/

CDC - Symptoms of Cervical Cancer

http://www.cdc.gov/cancer/cervical/basic_info/symptoms.htm

HPV Myths & Misconceptions with Fact Sheet

http://www.ashasexualhealth.org/std-sti/hpv/myths-and-misconceptions.html

CDC - HPV Vaccines

http://www.cdc.gov/hpv/vaccine.html

Postlicensure safety surveillance for quadrivalent human papillomavirus recombinant vaccine.

http://www.ncbi.nlm.nih.gov/m/pubmed/19690307/?i=4&from=cdc%20hpv%20vaccine%20adverse%20events

Sorrow and teaching in an oncologist's office - OpEd

http://articles.mcall.com/2006-07-20/opinion/3689304_1_cervical-cancer-pap-smears-new-cancer-vaccine