March 8, 2023 Open Mic and 100th Chat

What better day than International Women's Day to celebrate our 100th Chat. We had fifteen participants join us. You may find our transcript here and additional analytics here.

We began the chat by sharing our updated logo.  

The colors now reflect more gynecologic cancer awareness colors. 

We shared how #gyncsm chat sessions have been used in three different journal articles. You can view links to these as well as links to articles that reference cancer hashtag communities on our blog's  Publications page: http://gyncsm.blogspot.com .

Next we talked about our chat topics through the years. Check our Chat Topics page (http://gyncsm.blogspot.com/p/chat-topics.html) on our blog to see other topics. Here are three chats mentioned. 

• "Research Advocacy" with @RANAdvocate
• "Immunotherapy" with@CSHinrichsMD and patients @SurvivorSueWDC @mandmsportsmom who shared directly about being in a trial.
• "Reading Scientific Posters" with @KDRichardson924 and SASEP team

Next we discussed the OCRA Ovarian Cancer Screening and Symptom Awareness Consensus Statement . 

"#gyncsm re use of symptoms; important of course for early care advocating for work up but it is important re nuances also bc many pts coming blaming themselves for not knowing or coming in earlier when sometimes not be possible. I liked this summary,"

Two participants shared projects or campaigns they are working on. 

We are a nonprofit raising funds for #ovariancancer research, and promoting scientist/survivor collaboration in research. Sending 2 advocates to AACR next month to participate in SSP. #gyncsm

— Powell-Drescher Ovarian Cancer Research Foundation (@PowerOvarian) March 9, 2023

I'm starting a non-clinical gynecologic oncology patent navigator practice. I've been busy applying for grant funding. I will also handle financial matters. #gyncsm

— Codemo Writing Services (@roberta_codemo) March 9, 2023

We closed our chat in the usual way asking for TIL "Today I learned" and @gyncsm began by sharing:

From #gyncsm Chat #1:
TIL: This community is fantastic. I have high hopes for us - and glad to have found all of you. @drmarkham

TIL: A new way to connect and share with a community of people living with, advocating for and caring for GYN cancers! awesome! @eberrygynonc

— Christina Lizaso (@btrfly12) March 9, 2023

There is no chat in April but Save the date for our next #gyncsm chat on Wednesday, May 10th, at 8pmET to talk about “Urogynecology and Pelvic Health”. 

Dee

Open Mic and 100th Chat March 8, 2023

 

Christina and I are happy to invite you to #gyncsm's Open Mic and 100th Chat on Wednesday March 8. 2023 at 8pm ET. It seems like only yesterday when together with three gynecologic oncologists, Drs Dizon, Markham, and Boulay, we held our first chat in September 2013. 

To celebrate our 100th chat, we updated our logo.  

We've added three intersecting ovals (teal, peach, purple) to represent the intersection of those impacted by different gyn cancers into one community.

We thank each and every guest host and health care provider and researcher for providing important information to countless patients, survivors, advocates and caregivers through these chats. Our topic list is lengthy, but we focused our chats on the gyn cancers and their risks, advocacy, caregiving, quality of life, clinical trials, research results, news from medical conferences, genetics and personalize medicine, emotional and physical support, survivorship issues, recurrence, and how to work best with your doctor. Have a look at them all here.

On Wednesday we will open the floor to questions from this broad community in this 8th edition of an "Open Mic" chat. 

What's on your mind? 

• Do you want to discuss OCRA's  recent consensus statement on fallopian tube removal to reduce risk of ovarian cancer? Or how to participate in OCRA's program free genetic testing program? 
• Do you want to share your experience in a clinical trial? Or how to discuss clinical trials with your doctor?
• Do you want to discuss the latest research in treating endometrial cancer?
• Do you want to know what you can do to improve equity of treatment?  
• Do you want to discuss the  use of mirvetuximab soravtansine-gynx, Elahere,for women with recurrent ovarian cancer? 
• Do you want to know if others are experiencing QOL issues like yours? 
• Do you want to discuss low-dose aspiring use for ovarian cancer risk reduction? 
• If you are a health care provider, do you want to know where your patients get information? 
• Do you want to talk about getting involved in advocacy? 

 

What better day to join with other patients, survivors and health care providers that on International Women's Day. We hope to see you on Wednesday. 

Dee and Christina

#gyncsm co-foudners