Recently Drs. Laura Havrilesky, Shelby Reed and Laura Fish reached
out to our #gyncsm Twitter community to discuss the development of a
shared decision aid for use by women with ovarian cancer who are
considering PARPs as maintenance therapy. The first step involves
finding out what ovarian cancer patients know and think about PARPs. We
love their focus on shared decision making and asking patients! So we have invited them to be our guests for our Wednesday, November 11, 2020, 9pmET #GynCSM Twitter Chat.
We invite Ovarian Cancer patients, survivors and advocates to join us for this special discussion as we cover the following topics:
T1: How have you gotten information about PARP inhibitors? Have you seen advertisements (print, TV, social media)? How do social media sources play a role in your information gathering about possible treatments?
T2: Are PARP inhibitors a better fit for certain women than others?
T3: What are the pros and cons of maintenance therapy with PARP inhibitors?
T4: Is there anything you wish you had known earlier about PARP inhibitors?
T5: How do out of pocket expenses play a role in decisions you make about taking a PARP inhibitor?
T6: Are you aware of the current ASCO guidelines about PARP inhibitor maintenance therapy?
We look forward to seeing you all on November 11th!
Dee and Christina
#GYNcsm Co-Founders
I've seen blogs of several women whose CA125 rose on PARPs. They are told it would go down but often it just went up to a very high level much faster that it had before PARP. I don't see anything about PARPs fueling cancer in studies. What is the research on this?
ReplyDeleteThe CA-125 may rise but I am not sure they can say the PARP is the cause.I have not heard that it fuels the cancer. Dee
DeleteHow do I participate now? I don't know what to do.
ReplyDeleteI am sorry to miss this comment until after the chat. You may read A Guide to Tweet Chats & Twitter Basics in the upper right side of this blog. And be sure to read the highlights in the post above ( http://gyncsm.blogspot.com/2020/11/nov-112020-chat-parps-and-you-how-do.html) Dee
ReplyDelete