We will begin a new year of chats on Wednesday, January 10, 2018 with a discussion on Supporting Caregiver Wants and Needs. Our guest will be Lauren Hand, (@LCooperHand) a Gynecologic Oncology Fellow at Magee-Womens Hospital of University of Pittsburg Medical Center. Ms Hand is an investigator on The Essential Elements of Caregiver Support in Gynecologic Oncology, a project through the University of Pittsburgh. The goals of the project are to identify the unmet needs of family caregivers, summarize the
current state of practice of supporting caregivers, and propose a set of
essential and actionable elements to be included in any caregiver
support program in gynecologic cancer.
The questions that we will use to guide are discussion are:
T1: What are the top two things you would tell
healthcare providers about the needs of caregivers that you think they
need to hear?
T2: What would you share with those new to caregiving? What do you wish you or your caregiver had known about the caregiving role?
T3: What are some of the barriers to family caregivers getting access to and utilizing the support services they want and need?
T4a: What resources for caregiver support have you found in your area (formal and informal)? Have you utilized these resources?
T4b: How did you find out about local caregiving resources - physician, nurse, cancer center, nonprofit, etc.?
T5: If you could design a local family caregiver support program, what would that look like? What would you see as most important?
T6: What national/digital resources for caregivers have you found helpful? How can national and local programs work together?
T2: What would you share with those new to caregiving? What do you wish you or your caregiver had known about the caregiving role?
T3: What are some of the barriers to family caregivers getting access to and utilizing the support services they want and need?
T4a: What resources for caregiver support have you found in your area (formal and informal)? Have you utilized these resources?
T4b: How did you find out about local caregiving resources - physician, nurse, cancer center, nonprofit, etc.?
T5: If you could design a local family caregiver support program, what would that look like? What would you see as most important?
T6: What national/digital resources for caregivers have you found helpful? How can national and local programs work together?
https://www.cancer.net/coping-with-cancer/caring-loved-one/caregivers-taking-care-themselves
We look forward to chatting with you on Wednesday.
Dee and Christina
Founders Gyncsm
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