The questions that guided our discussion and a few of the responses:
T1: What instances seem to cause the greatest anxiety among cancer patients and survivors? What are your triggers?
@gyncsm T1 Whenever I have to take a blood test or ultrasound or other test. Waiting for the results is hard.— Lisa Gonzales (@runlikeacoyote) July 9, 2015
T1 My greatest anxiety is the annual scans & tests I need to make sure cancer aint back. Triggers is when I see the hospital #gyncsm— Dr. Gia Sison (@giasison) July 9, 2015
T1: anxiety regarding the cost of cancer care is huge - not just monetary - also time away from work/family/friends #gyncsm— Shannon Westin (@ShannonWestin) July 9, 2015
T2: Have you spoken to your healthcare provider about what causes your anxiety? Did it help? Do providers bring up and provide info?
T2: AS a provider, I find a calm demeanor combined with a detailed plan seems to reduce my patients anxiety. #gyncsm— Rick Boulay,MD (@journeycancer) July 9, 2015
T2 Patients want to be "good patients" for their doctor - don't want to admit they need help at times #gyncsm— AOSW (@oncosocialwork) July 9, 2015
@MDAndersonNews uses a distress thermometer to help determine which patients need a referral for support #gyncsm— Shannon Westin (@ShannonWestin) July 9, 2015
T3: What are tips and resources to relieve anxiety? What have you found to be helpful in dealing with anxious feelings?
@gyncsm T3 Running helps me deal with anxiety. It reminds me I AM healthy again. Also, sharing my feelings w/ friends & asking for prayers.— Lisa Gonzales (@runlikeacoyote) July 9, 2015
T3 diaphragmatic breathing, relaxation skills, exercises, journaling, lists of "projects", many other skills #gyncsm— Alene Nitzky Ph.D RN (@AleneGoneBad) July 9, 2015
T4: In the bigger picture, what are ways that we can change the healthcare system itself so that patients experience less anxiety?
Need to use allied health professional (social work, nurse navigators, etc) more to provide resources to patients and caregivers #gyncsm— Jen Burzawa (@jburzawa) July 9, 2015
T4 maybe some structured check-ins - telemed/other during that wait post visit for first check up; referrals ahead of time #gyncsm— Christina Lizaso (@btrfly12) July 9, 2015
If you missed the chat you may read the transcript here and the analytics here. Please scroll down for list of resources mentioned during the chat. And you may continue the conversation on the Smart Patients platform at https://www.smartpatients.com/gyncsmT4 Make navigating insurance processes easier - just making the appointment shouldn't cause anxiety! #gyncsm— AOSW (@oncosocialwork) July 9, 2015
We hope you will join us next month on August 12, 2015 to discuss Dealing with Short and Long Term Side Effects. Please remember to tweet using the #gyncsm hashtag to share information with our community.
#gyncsm co-moderator and co-founder
Definitions of Anxiety and Depression
NCI @theNCI - Adjustment to Cancer:Anxiety and Depression
Cure Today: Scanxiety With Lynch Syndrome
ASCO One in Three People with Cancer has Anxiety or other Mental Health Challenges
JCO : Screening, Assessment and Care of Anxiety and Depressive Symptoms...
Gyn Onc : Depression, Anxiety, and Quality of Life in Patients with Epithelial Ovarian Cancer http://t.co/bdOGIIIcGU
British Journal of Health Psychology: Social support, anxiety and depression after chemo for ovarian cancer: A prospective study http://t.co/YmGwnUKQLx
JCO : Evidence-Based Treatment of Anxiety in Patients With Cancer
CancerConnect.com Psychosocial Needs of Survivors of Gynecologic Cancers Must Be Addressed http://t.co/4lMSF9w5AZ
Medivizor 15 tips for Coping with Scanxiety
13 Things People With Anxiety Are Tired of Hearing, And What You Can Say Instead
Health Journeys - Meditation resources
NOCC - Living with OC
Reiki: Helping to Relieve the Anxiety of Cancer Patients
Society of Gynecologic Oncology @SGO_org
Anxiety Lingers Long After Cancer
Lost in Transition
Nanny Angel Network provides free, professional relief childcare to mothers with cancer & their families.
Zero Suicide Toolkit for Professionals