Wednesday, February 11, 2015

Care Beyond Medical Care- February 11, 2015 chat

We were so pleased to have Reimagine (@reimagine_me) with us for this month's Care Beyond Care Chat. Reimagine (https://reimagine.me/) helps people thrive following a cancer diagnosis through skills training, community, a magazine & an "online university".  Sophia Kercher (@sophiakercher), editor at @Reimagine_ME's magazine and Cindy Finch (@5thstepofcancer ), clinical therapist, instructor and writer at Reimagine also joined the chat.

Forty-four participants tweeted 534 Tweets in the hour. Additional analytics can be found here and the chat transcript can be found here

These questions guided our discussion:


T1: Many patients feel they lose control of their life while in treatment. What can help? What did you do to take control? 


T2: Did you pamper yourself while in treatment? What did you do? What did others do for you? Tips for those in treatment now? 


T3A: Dealing with a gyn cancer can cause stress. What things do you find helpful in reducing stress? What are some resources?
T3B. Did you ever feel pressured to be "happy" and "positive" ? How did you respond to people who said you needed to be.


T4: Feeling sad & experiencing depression is common for survivors. What helps you deal w/these feelings? Did you bring up w/ doctor?

Please scroll down for a list of resources shared during our chat. 

Remember that patients & caregivers are invited to continue our discussion on the Smart Patients platform at https://t.co/dFCf1Mcahw .

Mark your calendar for next month's chat No One Ever Told Me... on Wednesday, March 11, 2015 at 9pm EST.  See you then. 

Dee
Co-moderator

RESOURCES:

"A problem with how we treat cancer -- and how to fix it” by Cindy Finch http://t.co/liNCREyWKe

Reimagine Resources:
Reduce your Stress with Meditation: https://t.co/zjp3QcwvMo
9 Reasons to Meditate:https://t.co/j5iTIm9VNB
Finding a New Normal with Cancer: https://t.co/i6Yp2Qp3yS
Why Self Care Isn't Self Indulgent:https://t.co/d8D746W4CA
5 Tips for Taking Care of Yourself When You're a Caregiver:https://t.co/VmL4qnqgX2
Things to Do When You're Stuck at Home:https://t.co/krN9oixv51
3 Ways to Feel Great About your Body in 2015: https://t.co/k5ilCzbgSB
Basic Training- 9 class course in resiliency skills:https://t.co/L3UYy66saB
Yoga Might Heal-Scientists Say So!:https://t.co/fNMywbqwy6

Journal Articles:
A Literature Review of the Social & Psychological Needs of Ovarian Cancer Survivors http://t.co/b5ezCR3Gxf

Resilience, Positive Coping, & QOL Among Women Newly Diagnosed With Gynecologic Cancer : http://t.co/EqWXKmfjms

Quality of Life in Platinum-Sensitive Recurrent #Ovarian Cancer: Chemotherapy Versus Surgery + Chemotherapy http://t.co/n1nUJtZtCp

Quality of life and patient-reported outcomes in #endometrialcancer clinical trials: a call for action! 

Improving quality of life in female cancer survivors: current status and future questions. @drdonsdizon http://t.co/JjfYeF9roz

Quality of Life in #OvarianCancer Treatment and Survivorship http://t.co/VJlGtP4sUf
American Psychosocial Oncology Society @APOSHQ info, helpline & resources http://t.co/2Q56PjeKQQ

The Road To Resilience http://t.co/lC7kS6OiH2 via @APA

Can We Maximize Both Value and Quality in Gynecologic Cancer Care? A Work in Progress @ASCO  http://t.co/U7PKVfCdkh

Cancer Care for the Whole Patient: Meeting Psychosocial Health Needs Report https://t.co/UbERG1CLb5

Cervical Cancer Survivorship: Long-term Quality of Life and Social Support. http://t.co/iIYIUANJGK

Profiles in Oncology Social Media Series: @DrMarkham & the #gyncsm chat http://t.co/SWtCB2SGTe

Other online information:
How Not To Say the Wrong Thing- Ring Theory of Kvetching: Comfort in, Dump out. http://t.co/TF4zJoH1uL

Stress Relievers: Tips to Tame Stress: http://t.co/KzjBIfDOAJ @MayoClinic

Example of UPMC's Survivorship Program: (PDF) http://t.co/HQdOn0copQ 

Cancer Depression / PTSD Info from @cancerdotnet http://t.co/YamzPwc89e

Support Connection Announces Its Next Book Group For Women With Cancer | The Yorktown Daily Voice http://t.co/2OufaiSf6F

Vulvar cancer fact sheet via @NCICancerStats : http://t.co/UWD5sBheIT

Books
The Human Side of Cancer
Happiness in the Storm

Miscellaneous:


Trips for Young Adults: @FirstDescents@athletes4cancer 
Music for Meditation: http://mysoftmusic.com/

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