#gyncsm Community: July 2014

Friday, July 25, 2014

Empowering Women in Their Gyn Health

Christina (@btrfly12) and I (@womenofteal) had the pleasure of being a part of the #patientchat today lead by @patientchat (intake.me). The topic was Empowering Women in their Gyn Health. We spoke about starting the #gyncsm chat and what we learned from those chats. We also shared information about the symptoms of gyn cancers, screening tests for cervical cancer and the pelvic exam controversy.

The complete transcript can be found here.

We appreciate the opportunity to share information about gyn cancers with the #patientchat audience.

Resources

Support:

Chemo Angels

http://helpfromhome.org/chemo-angels-supporting-cancer-patients

A fresh Chapter

http://www.afreshchapter.com/ tips for survivorship

Cancer Care @cancercare

LiveSTRONG @livestrong

Cancer Support Community @cancersupportcm

Book

The Cancer Olympics Robin McGee

Clinical trials:

http://clinicaltrials.gov/

Patient Experience with clinical trial ( not cancer)

http://yourgoldwatch.blogspot.ca/2013/06/learning-from-clinical-trial.html

HPV information:

http://www.cdc.gov/cancer/gynecologic/basic_info/prevention.htm

Hereditary Cancer Quiz

http://t.co/s7CqL17puo

Gyn Cancer Blog List

http://t.co/s7CqL17puo

Gyn Cancer Symptoms

http://www.cdc.gov/cancer/gynecologic/basic_info/symptoms.htm

Symptom Diary

http://t.co/r5vkPRogvc

Article – More Than 60% of Ovarian Cancer Patients Do Not Receive Recommended Treatment

http://t.co/uIqrWaB2rd

Pelvic Exam Articles:

Doctors Group Advises Against Regular Pelvic Exams via @nytimes http://t.co/joqFFYqc8x

The Dispute Over Annual Pelvic Exams via @nytimes http://t.co/J79Cc3VWf8

What You Need to Know About New Pelvic Exam Guidelines via @TodayShow http://t.co/DiAl0WUly

Healthy Women Do Not Need Routine Pelvic Exams via @washingtonpost http://t.co/ReJiAIpVKL

Most Women Don’t Need Regular Pelvic Exams via @USNews http://t.co/EvQXyyopNK

Hereditary Cancer Signs

https://twitter.com/BRCAresponder/status/492732397562368000/photo/1

intake.me blog

http://www.intake.me/blog/

Dee
Co-moderator

Wednesday, July 9, 2014

Demons of the Mind- PTSD and Mental Health Concerns - July 2014 chat

This month we discussed the mental health issues (anxiety, fear, depression, PTSD) that gynecologic cancer survivors may experience and suggested ways to cope with those issues. We were joined by our mental health moderator, Dr Ann Becker-Schutte, as well as a number of other health care professionals and survivors. We had 43 participants total and a total of 582 tweets in the hour. Additional analytics may be found here.

The night's topic questions were:

T1: What are the signs of emotional distress? How do you know when it is time to get additional help?

T2: How often is emotional state discussed during patient visits? Is it asked about during cancer care appointments?

T3a: What situations for you have led to emotional distress? What are some key triggers?

T3b: What do you do that helps you through times of distress? What are some resources?

T4: Once beyond treatment, many survivors continue 2 worry & have feelings that impact daily living. What can survivors do to cope?

T5: Living with uncertainty of a recurrence is difficult. What have you found helpful?

T6 (1/2): When we connect w/ others impacted by cancer, there is the reality of loss & also guilt re: surviving when others don't.

T6 (2/2): What keeps you connecting? What helps you cope?

If you missed the chat a complete transcript is found here.

Our next chat topic is Where to go for support . We hope you can join us on Wednesday, August 13, 2014 at 9pm EST.

Mental Health Resources:

American Cancer Society Cancer Treatment & Survivorship Facts & Figures 2012-2013
http://www.cancer.org/acs/groups/content/@epidemiologysurveilance/documents/document/acspc-033876.pdf

Communications skills training for health care professionals working with people who have cancer - PubMed http://t.co/oiYAe6f8lN

NCI Fact Sheet Psychological Stress and Cancer

http://t.co/wCYyypOWen

Cancer Care Support Services

http://t.co/xBP3sug7MS

LiveSTRONG Survivor Care and Survivorship Notebook

http://t.co/RxdvHZxYNL

American Psychosocial Oncology Society