Open Mic Chat : December 11, 2013

Thank you to our moderators, survivors, caregivers, health care providers and "lurkers" who participated in our Open Mic chat. We covered a number of interesting topics including support groups, fertility discussions, when to see your PCP vs your oncologist, survivorship, etc. Here is a link to the transcript from tonight's  #gyncsm chat.

Next month's chat topic ( 1/8/14 at 9pm EST) is cervical cancer.

Resources shared during the chat:

Pancreatic Cancer Action Network –Vision of progress

http://www.pancan.org/section_about/vision_of_progress/

Woman to Woman

http://nyp.org/services/oncology/woman-to-woman-support-group.html

Stupid Cancer

http://stupidcancer.org/

Bright Pink

http://www.brightpink.org/

Sharsheret

http://sharsheret.org/

Cancer Schmancer

http://www.cancerschmancer.org/

Ovarian Cancer Discovery Deepens Knowledge of Survival Outcomes

http://www.sciencedaily.com/releases/2013/12/131209105230.htm?utm_content=bufferdfc96&utm_source=buffer&utm_medium=twitter&utm_campaign=Buffer#.UqZg3FkFCAQ.twitter

Ovarian Cancer Survivor Jill Pall Continues Fundraising Efforts to Help Kicking For The Dream Fight Ovarian Cancer

http://www.prweb.com/releases/2013/11/prweb11356230.htm

Tweet handles shared  

@ImermanAngels

@teaminspire

@CancerHopeNet

We at #gyncsm wish you all a Happy and Health Holiday. 

Dee

Co-moderator

Oct 9,2013 Genetics and Personalized Medicine

Thank you to our moderators and the survivors, caregivers , health care providers and the "lurkers"  who participated in our October chat. Here is a link to the transcript from tonight's  #gyncsm chat.

• Angelina Jolie, the Thoughtful Patient http://www.huffingtonpost.com/rick-boulay-md/angelina-jolie-prophylactic-mastectomy_b_3322380.html?utm_hp_ref=tw
• Society of Gynecologic Oncologists Education Committee Statement on Risk Assessment for Inherited Gynecologic Cancer Predispositions http://d1izdzz43r5o67.cloudfront.net/guidelines/SocietyGynecologicOncologists.pdf
• Ovarian Cancer Action call for policy change on genetic testing availability www.ovarian.org.uk/news/news-and-press-releases/2013/ovarian-cancer-action-call-for-policy-change-on-genetic-testing-availability/
• foundationforwomenscancer.org
• Breast Cancer’s Link to Ovarian Cancer: It’s in Your Genes http://www.foundationforwomenscancer.org/wp-content/uploads/Breast-Cancers-Link-to-Ovarian-Cancer-Its-in-your-genes1.pdf
• Ovarian Cancer Risk Factors and Prevention http://www.cancer.net/cancer-types/ovarian-cancer/risk-factors-and-prevention
• Ovarian Cancer: Are You at Risk (with assessment quiz) http://www.ovarian.org/are_you_at_risk.php
• Genetic Information Nondiscrimination Act of 2008 http://www.genome.gov/10002328
• National Society of Genetic Counselors - Find a Genetic Counselor http://www.nsgc.org/FindaGeneticCounselor/tabid/64/Default.aspx
• My Family Health Portrait - A Tool from the Surgeon General https://familyhistory.hhs.gov/fhh-web/home.action
• Sharsheret Family Tree & Genetic Counseling Resources http://www.sharsheret.org/content/how-we-help/family-tree
• Meet Guyanna! Beating the Odds Against Ovarian Cancer (blog post) http://insideupmc.blogspot.com/2013/09/meet-guyanna-beating-odds-against.html
• The Basics of Personalized Medicine http://health.usnews.com/health-conditions/cancer/personalized-medicine
• Mayo Clinic Center for Individualized Medicine http://mayoresearch.mayo.edu/center-for-individualized-medicine/genomics-in-patient-care.asp
• The Personalization of Medicine http://health.usnews.com/health-news/hospital-of-tomorrow/articles/2013/07/12/the-personalization-of-medicine
• Living With Cancer: A Rainbow Coalition http://well.blogs.nytimes.com/2013/09/12/living-with-cancer-a-rainbow-coalition/?smid=tw-share&_r=0
• Personalized Medicine Coalition - Personalized Medicine 101 http://www.personalizedmedicinecoalition.org/about/about-personalized-medicine/personalized-medicine-101
• Ovarian cancer survivor offers insight for women http://www.baynews9.com/content/news/baynews9/news/article.html/content/news/articles/cfn/2013/9/28/ovarian_cancer_survi.html?cid=rss#.Ukcyuc3H5WY.twitter
• Clearity Foundation https://www.clearityfoundation.org/
• Caris Life Science http://www.carislifesciences.com/
• Colleen's Dream Ovarian Cancer Fact Sheet http://t.co/LneWaoWXus
• Personalized Medicine May Be Good For Patients But Bad For Drug Companies' Bottom Line http://www.forbes.com/sites/henrymiller/2013/09/25/personalized-medicine-may-be-good-for-patients-but-bad-for-drug-companies-bottom-line/
• Pop quiz: do you know what personalized medicine means? http://gigaom.com/2013/08/23/pop-quiz-do-you-know-what-personalized-medicine-means/

DAS