Resources

General Gynecologic Cancer Resources

Society of Gynecologic Oncology (SGO)
Seek a Specialist (SGO) https://specialist.sgo.org/
Survivorship Toolkit - https://www.sgo.org/survivorship-toolkit/
Clinical Trial Resources - https://www.sgo.org/clinical-trials/

Foundation for Women's Cancer (FWC)

Sexuality & Intimacy: Your Guide

Survivorship: Your Guide

Palliative Care: Your Guide

Postoperative Pain Management: Your Guide

Clinical Trials: Your Guide

National Comprehensive Cancer Network (NCCN)

• NCCN Clinical Practice Guidelines for patients 
• NCCN Guidelines for Patients - Cervical, Ovarian and Uterine

 

Medical.watch - free weekly updates on ovarian cancer, endometrial cancer, and cervical cancer.

Rare Cancer of the Female Genital Organs and Placenta (EURACAN)

"What Every Woman Should Know" Video - http://www.nedthemovie.com/wewsk-videos/
Cancer-Specific (Ovarian, Cervical, Uterine/Endometrial, Vulvar) Modules of this video are also available.

Chats:
#gyncsm - 2nd Wednesdays 8pmET - Twitter handle @gyncsm

 

Cervical Cancer:
National Cancer Institute (NCI) - https://www.cancer.gov/types/cervical
Foundation for Women's Cancer (FWC) https://www.foundationforwomenscancer.org/gynecologic-cancers/cancer-types/cervical/ 

Foundation for Women's Cancer (2021): Cervical Cancer: Your Guide

 
National Cervical Cancer Coalition
Cervivor 

 

Ovarian Cancer:
National Cancer Institute (NCI) - http://www.cancer.gov/cancertopics/types/ovarian
Foundation for Women's Cancer (2021): Ovarian Cancer: Your Guide
Foundation for Women's Cancer: Rare Tumor: Malignant Ovarian Germ Cell Tumors
Foundation for Women's Cancer Brochure (2021): Cancer CA-125 Levels-Your Guide
The American Journal of Hematology and Oncology: CA-125 and Ovarian Cancer

National Ovarian Cancer Coalition (NOCC)
Ovarian Cancer Research Alliance (OCRA) 
OCRA Community Partner Directory by State

OCRA Inspire Online Patient Community 

SHARE

SupportConnection

Clearity Foundation / Steps Through OC

Mucinous Ovarian Cancer Coalition

Germ Cell Ovarian Cancer Support Group

Ovacome – Rare ovarian cancers Support Group

Small Cell Ovarian Cancer Foundation

 

Fallopian Tube Cancer:
Cancer.net from the American Society of Clinical Oncology - http://www.cancer.net/cancer-types/fallopian-tube-cancer

Primary Peritoneal Cancer:
Foundation for Women's Cancer https://www.foundationforwomenscancer.org/gynecologic-cancers/cancer-types/primary-peritoneal/ (scroll down)

Uterine/Endometrial Cancer:
NCI Uterine, Endometrial - https://www.cancer.gov/types/uterine and https://www.cancer.gov/types/uterine/patient/endometrial-treatment-pdq
NCI Uterine, Sarcoma - https://www.cancer.gov/types/uterine and https://www.cancer.gov/types/uterine/patient/uterine-sarcoma-treatment-pdq
Foundation for Women's Cancer (2021): Endometrial Cancer: Your Guide

Peach Outreach
Uterine Cancer Awareness Network
ECANA: Endometrial Cancer Action Network for African-Americans

Rare Forms:
Foundation for Women's Cancer: Rare Tumor: Uterine Serous Carcinoma
Foundation for Women's Cancer: Rare Tumor: Uterine Leiomyosarcoma 

Foundation for Women's Cancer: Rare Tumor: Carcinosarcoma

Uterine Carcinosarcoma/MMMT http://gcsproject.org/

Endometrial Stromal Sarcoma http://ess-sarcoma.com/
Leiomyosarcoma: http://lmsdr.org/ and http://nlmsf.org/

Sarcomas Overall: https://sarcomaalliance.org/ and https://www.curesarcoma.org/  

 

Gestational Trophoblastic Disease (GTD): 

NCI -
http://www.cancer.gov/cancertopics/pdq/treatment/gestationaltrophoblastic/Patient/page1
Cancer.net from the American Society of Clinical Oncology - http://www.cancer.net/cancer-types/gestational-trophoblastic-disease
Foundation for Women's Cancer https://www.foundationforwomenscancer.org/gynecologic-cancers/cancer-types/gestational-trophoblastic/ (scroll down)

Our Sam: Special Focus on Gestational Trophoblastic Disease

 

Vaginal Cancer:  

NCI - http://www.cancer.gov/cancertopics/types/vaginal
Foundation for Women's Cancer https://www.foundationforwomenscancer.org/gynecologic-cancers/cancer-types/vaginal/

Foundation for Women's Cancer: Vulvar and Vaginal Cancers: Your Guide

Foundation for Women's Cancer: Rare Tumor: Vulvar and Vaginal Melanoma

 

Vulvar Cancer: 

NCI - http://www.cancer.gov/cancertopics/types/vulvar
Foundation for Women's Cancer https://www.foundationforwomenscancer.org/gynecologic-cancers/cancer-types/vulvar/

Foundation for Women's Cancer: Vulvar and Vaginal Cancers: Your Guide

Foundation for Women's Cancer: Rare Tumor: Vulvar and Vaginal Melanoma

 

High Risk / Previvor Resources:
BRCA Mutation http://www.cancer.gov/cancertopics/factsheet/Risk/BRCA
Bright Pink www.bebrightpink.org
DES community on Facebook https://www.facebook.com/DESInfo
F.O.R.C.E. (Facing Our Risk of Cancer Empowered) http://www.facingourrisk.org/

Sharsheret http://www.sharsheret.org/
Lynch syndrome http://www.cancer.net/cancer-types/lynch-syndrome; https://www.aliveandkickn.org/; https://www.curetoday.com/authors/georgia-hurst

Cowden syndrome http://www.cancer.net/cancer-types/cowden-syndrome
Li-Faumeni syndrome https://www.lfsassociation.org/what-is-lfs/
Peutz-Jeghers syndrome (PJS) https://www.cancer.net/cancer-types/peutz-jeghers-syndrome

 

 

Genetic Counseling: 
National Society of Genetics Counselors http://nsgc.org/
Find a Counselor Tool: https://www.nsgc.org/page/find-a-genetic-counselor
NCI - https://www.cancer.gov/about-cancer/causes-prevention/genetics
FWC Video Understanding Genetics in Gynecologic Cancers

 
Genomics: 
NCI - https://www.cancer.gov/about-nci/organization/ccg/cancer-genomics-overview

 

Other Cancer and Healthcare Chats on Twitter

 

(last update: April 2022)