#gyncsm Community: Cancer risk factors

Showing posts with label Cancer risk factors. Show all posts

Friday, March 4, 2016

March 9, 2016 Genetic Counselors and Understanding Gyn Cancer Risk

We are thrilled to be welcoming the leadership of the National Society of Genetic Counselors (@GeneticCouns) as our guests during the March 9, 2016 chat beginning at 9pmET (8CT/6PT). In July 2015 we shared on this blog a post titled, "Genetic Testing and Ovarian Cancer", which first appeared on the NSGC website. This month we will be expanding on that post and will be chatting about the role of genetic counselors in all gynecologic cancers as well as gynecologic cancer risks.

The topics questions are:

T1: What is genetic counseling and why it is recommended prior to genetic testing?

T2a: Who should consider genetic testing? How does it help those already diagnosed with a GYN cancer? Does it impact treatment plans?

T2b: Have you had genetic testing? What influenced your decision? If yes, did you have a genetic counselor?

T3: Which genetic mutations are known to increase risk for gynecologic cancers? Do these gene mutations impact risks for other cancers?

T4a: How can people access genetic counseling? What prep work is needed? Are referrals required?
T4b: Does insurance cover genetic counseling? Are there protections against discrimination based on genetic test results?

T5a: Let's talk about the term "risk". If mutations are found that increase my cancer risk, what does that really mean for me?

T5b: For those who have had genetic counseling and/or testing, how did the results impact your health care?

T6: Where can those with a genetic mutation find the latest info and get help weighing options for preventative action or treatment?

T7: How and when to share test results with family can be tough. What are some tips?

If you would like to read more about genetic counselors and genetic testing check out these sites:

National Society of Genetic Counselors

NCI: Genetic Testing for Hereditary Syndromes Cancer

We look forward to you joining us!

Dee

Co-moderator

Wednesday, January 14, 2015

Gynecologic Cancer Risk Factors - Jan 14, 2015 Chat

What an great way to start off the New Year. We had 52 participants and over 1.4 M impressions as we chatted about the risk factors for gynecologic cancers.

“A risk factor is anything that increases a person’s chance of developing cancer.” @cancerdotnet

Some of the topics we discussed included the genetic risks of gynecologic cancers (BRCA, Lynch syndrome, Cowden syndrome), DES (diethylstibestrol) exposure, as well as HPV vaccines and cervical cancer.

You may find a transcript of the chat here.

The questions that guided our conversation were:
T1A: Are you aware of the risk factors for gyn cancers? When did you learn them? How have they influenced your health decisions?

T1B: Providers - Have your patients asked you about risk factors before or after diagnosis?

T2: Viral infections caused by HPV virus raise risk for cervical, vaginal & vulvar cancers. What do women & parents need to know?

T3: What is DES (Diethystibestrol)? How are women exposed to the hormone? What are the risks?

T4: Genetics are thought to account for as much as 25% of some GYN cancers. BRCA has received media attn. What are other genetic risks?

T5: Have you tried to reduce your risk for cancer, recurrence or other cancers? What can women do w/ the info about risk factors?

Be sure to check the resources below for links to information on this month's topic.

We look forward to having you join us for next month's chat Wednesday, February 11, 2015 at 9pm EST as we discuss Care Beyond Medical Care with @Reimagine_ME .

Dee Sparacio
Co-moderator

Resources:

Risks:
Risk factors for ovarian cancer from @cancerdotnet http://www.cancer.net/cancer-types/ovarian-cancer/risk-factors-and-prevention
Risk of #ovariancancer. http://t.co/L1y67jHEnk

Risk factors for cervical cancer from @cancerdotnet

http://www.cancer.net/cancer-types/cervical-cancer/risk-factors

http://www.cancer.net/cancer-types/cervical-cancer/prevention

10 Cervical #Cancer Risks You May Not Know About: http://t.co/b2wJQHOcE5

Risk factors for uterine cancers from @cancerdotnet

http://www.cancer.net/cancer-types/uterine-cancer/risk-factors-and-prevention

Risk factors for endometrial cancer from @MayoClinic

http://www.mayoclinic.org/diseases-conditions/endometrial-cancer/basics/risk-factors/con-20033696

Top 10 risk factors for Endometrial cancer: http://t.co/WVWKXMb1I0

Risk factors for fallopian tube cancer @cancerdotnet

http://www.cancer.net/cancer-types/fallopian-tube-cancer/risk-factors-and-prevention

Risks for vaginal cancer from @cancerdotnet

http://www.cancer.net/cancer-types/vaginal-cancer/risk-factors-and-prevention

Risk for vulvar cancer from @MayoClinic

http://www.mayoclinic.org/diseases-conditions/vulvar-cancer/basics/risk-factors/con-20043483

Risks for GTD @GYNcancer

http://www.foundationforwomenscancer.org/types-of-gynecologic-cancers/gestational-trophoblastic-disease-gdt/risk-factors/

Risks for #primaryperitoneal cancer @GYNcancer

http://www.foundationforwomenscancer.org/types-of-gynecologic-cancers/primary-peritoneal/risk-factors/

Genetics of Breast & Ovarian via @LguzzardiM http://t.co/peN9EffywH

Prevention:
Cervical Cancer Prevention http://t.co/aC601IE3hK

DES:
DES Info via @theNCI: http://t.co/mbCZ8znENc
DES Info via @thathealthsite http://t.co/IaSDmNrjoZ
DES Info via @AmericanCancer: http://t.co/c4v7Qmkgxy
DES sons http://t.co/ExFEnLxVBB

Lynch syndrome:
Lynch syndrome information via @cancerdotnet http://t.co/cVwW8nh9bY

Cowden syndrome:
Cowden syndrome information via @cancerdotnet http://t.co/BiAPXKaMe8

HPV:
HPV Myths & Misconceptions with Fact Sheet http://www.ashasexualhealth.org/stdsstis/hpv/hpv-myths-facts/ [updated link 5/2017]
CDC HPV and cancer http://t.co/03R35ZJeP6
Five Things About HPV Every Woman Should Know http://t.co/ouiehRp69T
What #parents should know about the #HPV vaccine: http://t.co/BCKBHa3ekQ
American Sexual Health Association:
http://www.ashasexualhealth.org/stdsstis/hpv/hpv-cervical-cancer/
http://www.ashasexualhealth.org/sexual-health/ask-the-experts/hpv/
10 Thinks to Know About HPV Fact Sheet http://www.ashapublications.org/ten-things-to-know-about-hpv/

Misc:
High Risk / Previvor resources: @facingourrisk @bebrightpink @sharsheret

Unexpected Gynecologic Malignancy Diagnosed After Hysterectomy Performed for Benign Indications http://t.co/XnToRcdpQS

Increased #CervicalCancer Risk Associated With Screening at Longer Intervals. http://t.co/aWG1il5Grd

The Pill and Cancer: What You Should Know via @MDAndersonNews http://t.co/3xJl2DWXVD

Tool - family cancer history (from Myriad) https://t.co/7uOr9oPbTc;
Tool - family health history (from Surgeon General) https://t.co/czksLcq3dZ

Rick Boulay TEDX talk on cancer bias. https://t.co/BZLYWe8NA3

Friday, January 9, 2015

January Chat Topic Questions : Gynecologic Cancer Risk Factors

Happy New Year!

We begin this year's chats on January 14, 2015 at 9 pm EST. We will be discussing the risk factors for gynecologic cancers. "A risk factor is anything that increases a person’s chance of developing cancer." - @cancerdotnet.

Following the questions you will find links to information from Cancer.Net, the Mayo Clinic and the Foundation for Women's Cancer on the risk factors of each gynecologic cancer.

Topic Questions:
T1A: Are you aware of the risk factors for gyn cancers? When did you learn them? How have they influenced your health decisions?