#Dazzle4Rare - Rare Disease Campaign 2017

We are pleased to once again support the #Dazzle4Rare Campaign sponsored by @hesaonlineorg. Last year was the first time we partnered with #Dazzle4Rare to raise awareness of rare diseases. You may read least year's blog post here.

A number of gynecologic cancers are considered rare diseases by the NIH. Ovarian, Endometrial/Uterine, Fallopian Tube, Vaginal and Vulvar Cancers are rare as are the two gynecologic cancers we discussed during this month's chat, Primary Peritoneal and Gestational Trophoblastic Disease. 

You may learn more about how you can get involved in this year's #Dazzle4Rare Campaign at  https://www.daycause.com/hesaonlineorg/dazzle4rare-2017

Feel free to share tweets like this one from August 13 to the 20th.

#Dazzle4Rare Learn about PPC & GTD rare gynecologic cancers http://gyncsm.blogspot.com/2017/08/august-92017-chat-you-never-heard-of.html #gyncsm

or

#Dazzle4Rare Vulvar, Vaginal and Fallopian Tube are rare gyn cancers   http://gyncsm.blogspot.com/2016/02/february-chat-rare-gyn-cancers-vuvlar.html #gyncsm

If you would like to share your story with a rare gynecologic disease with the #gyncsm community please e-mail us.


Dee and Christina
Founders, #gyncsm Community

#Dazzle4Rare Campaign

The #gyncsm community supports women diagnosed with a number of gynecologic cancers that are considered by the NIH to be rare diseases. In an effort to raise awareness that Ovarian, Endometrial/Uterine, Fallopian Tube, Gestational Trophoblastic Disease, Vaginal and Vulvar Cancers are rare diseases, #gyncsm supports the #Dazzle4Rare campaign. You can join the effort too. Read the post below which originally appeared on the HESA website (http://www.hesaonline.org) and join us as we support #Dazzle4Rare during the week of August 15th - 21st. 

Here's something from #gyncsm that you can share:

• Let's #Dazzle4Rare - Learn about some of the rare gynecologic cancers http://gyncsm.blogspot.com/2016/02/february-chat-rare-gyn-cancers-vuvlar.html #gyncsm

Click here to join the #Dazzle4Rare thunderclap.

#Dazzle4Rare Social Media Campaign

During the week of August 15th through the 21st HESA is going to #Dazzle4Rare. We will be tweeting, posting, liking, and sharing for rare disease. It’s projected that 1 in 10 people suffer from a rare disease [https://globalgenes.org/rare-diseases-facts-statistics/]. It’s also projected that there are at least six to seven thousand rare diseases. With 10% of the population suffering from between six and seven thousand rare diseases, it’s hard for any one rare disease group to spread awareness of their condition.

We can band together as a wider, greater community and spread awareness together and for each other. We can join hands and reach around the globe to share our messages with those who would otherwise never hear about many of these conditions. The more we speak up and speak out, the more likely we are to reach those who may need to hear our message the most.

Tag your selfies. Tell your rare disease story. Share someone else’s rare disease story. Raise awareness.

If you would like to join our #Dazzle4Rare campaign, join our discussion group. We’d love to hear your ideas, see your posts, and find out more about your organization! Let’s dazzle the World and show everyone how rare can shine!


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Dee and Christina
Founders, #gyncsm Community