#gyncsm Community: depression

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Wednesday, February 11, 2015

Care Beyond Medical Care- February 11, 2015 chat

We were so pleased to have Reimagine (@reimagine_me) with us for this month's Care Beyond Care Chat. Reimagine (https://reimagine.me/) helps people thrive following a cancer diagnosis through skills training, community, a magazine & an "online university". Sophia Kercher (@sophiakercher), editor at @Reimagine_ME's magazine and Cindy Finch (@5thstepofcancer ), clinical therapist, instructor and writer at Reimagine also joined the chat.

Forty-four participants tweeted 534 Tweets in the hour. Additional analytics can be found here and the chat transcript can be found here.

These questions guided our discussion:

T1: Many patients feel they lose control of their life while in treatment. What can help? What did you do to take control?

T2: Did you pamper yourself while in treatment? What did you do? What did others do for you? Tips for those in treatment now?

T3A: Dealing with a gyn cancer can cause stress. What things do you find helpful in reducing stress? What are some resources?

T3B. Did you ever feel pressured to be "happy" and "positive" ? How did you respond to people who said you needed to be.

T4: Feeling sad & experiencing depression is common for survivors. What helps you deal w/these feelings? Did you bring up w/ doctor?

Please scroll down for a list of resources shared during our chat.

Remember that patients & caregivers are invited to continue our discussion on the Smart Patients platform at https://t.co/dFCf1Mcahw .

Mark your calendar for next month's chat No One Ever Told Me... on Wednesday, March 11, 2015 at 9pm EST. See you then.

Dee

Co-moderator

RESOURCES:

"A problem with how we treat cancer -- and how to fix it” by Cindy Finch http://t.co/liNCREyWKe

Reimagine Resources:

Reduce your Stress with Meditation: https://t.co/zjp3QcwvMo

9 Reasons to Meditate:https://t.co/j5iTIm9VNB

Finding a New Normal with Cancer: https://t.co/i6Yp2Qp3yS

Why Self Care Isn't Self Indulgent:https://t.co/d8D746W4CA

5 Tips for Taking Care of Yourself When You're a Caregiver:https://t.co/VmL4qnqgX2

Things to Do When You're Stuck at Home:https://t.co/krN9oixv51

3 Ways to Feel Great About your Body in 2015: https://t.co/k5ilCzbgSB

Basic Training- 9 class course in resiliency skills:https://t.co/L3UYy66saB

Yoga Might Heal-Scientists Say So!:https://t.co/fNMywbqwy6

Journal Articles:

A Literature Review of the Social & Psychological Needs of Ovarian Cancer Survivors http://t.co/b5ezCR3Gxf

Resilience, Positive Coping, & QOL Among Women Newly Diagnosed With Gynecologic Cancer : http://t.co/EqWXKmfjms

Quality of Life in Platinum-Sensitive Recurrent #Ovarian Cancer: Chemotherapy Versus Surgery + Chemotherapy http://t.co/n1nUJtZtCp

Quality of life and patient-reported outcomes in #endometrialcancer clinical trials: a call for action!

http://t.co/ceYxKSy3nF

Improving quality of life in female cancer survivors: current status and future questions. @drdonsdizon http://t.co/JjfYeF9roz

Quality of Life in #OvarianCancer Treatment and Survivorship http://t.co/VJlGtP4sUf

American Psychosocial Oncology Society @APOSHQ info, helpline & resources http://t.co/2Q56PjeKQQ

The Road To Resilience http://t.co/lC7kS6OiH2 via @APA

Can We Maximize Both Value and Quality in Gynecologic Cancer Care? A Work in Progress @ASCO http://t.co/U7PKVfCdkh

Cancer Care for the Whole Patient: Meeting Psychosocial Health Needs Report https://t.co/UbERG1CLb5

Cervical Cancer Survivorship: Long-term Quality of Life and Social Support. http://t.co/iIYIUANJGK

Profiles in Oncology Social Media Series: @DrMarkham & the #gyncsm chat http://t.co/SWtCB2SGTe

Other online information:

How Not To Say the Wrong Thing- Ring Theory of Kvetching: Comfort in, Dump out. http://t.co/TF4zJoH1uL

Stress Relievers: Tips to Tame Stress: http://t.co/KzjBIfDOAJ @MayoClinic

Example of UPMC's Survivorship Program: (PDF) http://t.co/HQdOn0copQ

Cancer Depression / PTSD Info from @cancerdotnet http://t.co/YamzPwc89e

Support Connection Announces Its Next Book Group For Women With Cancer | The Yorktown Daily Voice http://t.co/2OufaiSf6F

Vulvar cancer fact sheet via @NCICancerStats : http://t.co/UWD5sBheIT

Books:

The Human Side of Cancer

Happiness in the Storm

Miscellaneous:

Trips for Young Adults: @FirstDescents, @athletes4cancer

Music for Meditation: http://mysoftmusic.com/

Friday, February 6, 2015

February Chat: Care Beyond Medical Care

This month's chat will take place on Wednesday, February 11, 2015 at 9pm EST (8pm CST / 7pm MST / 6pm PST).

Our topic will be Care Beyond Medical Care. We will be joined by Reimagine: "Medicine treats your cancer, we help you take your life back. Take a class today."
( reimaginecancer.com | @Reimagine_ME )

For further reading on this topic, here's an OpEd piece by Cindy Finch of Reimagine.ME
http://www.latimes.com/opinion/opinion-la/la-ol-cancer-treatment-psychosocial-healthcare-20150121-story.html

Topic Questions:

T1: Many patients feel they lose control of their life while in treatment. What can help? What did you do to take control?

T2: Did you pamper yourself while in treatment? What did you do? What did others do for you? Tips for those in treatment now?

T3A: Dealing with a gyn cancer can cause stress. What things do you find helpful in reducing stress? What are some resources?

T3B. Did you ever feel pressured to be "happy" and "positive" ? How did you respond to people who said you needed to be.

T4: Feeling sad & experiencing depression is common for survivors. What helps you deal w/these feelings? Did you bring up w/ doctor?

We look forward to having you join us for a lively and informative discussion.

Dee

#gyncsm co-moderator

Wednesday, July 9, 2014

Demons of the Mind- PTSD and Mental Health Concerns - July 2014 chat

This month we discussed the mental health issues (anxiety, fear, depression, PTSD) that gynecologic cancer survivors may experience and suggested ways to cope with those issues. We were joined by our mental health moderator, Dr Ann Becker-Schutte, as well as a number of other health care professionals and survivors. We had 43 participants total and a total of 582 tweets in the hour. Additional analytics may be found here.

The night's topic questions were:

T1: What are the signs of emotional distress? How do you know when it is time to get additional help?

T2: How often is emotional state discussed during patient visits? Is it asked about during cancer care appointments?

T3a: What situations for you have led to emotional distress? What are some key triggers?

T3b: What do you do that helps you through times of distress? What are some resources?

T4: Once beyond treatment, many survivors continue 2 worry & have feelings that impact daily living. What can survivors do to cope?

T5: Living with uncertainty of a recurrence is difficult. What have you found helpful?

T6 (1/2): When we connect w/ others impacted by cancer, there is the reality of loss & also guilt re: surviving when others don't.

T6 (2/2): What keeps you connecting? What helps you cope?

If you missed the chat a complete transcript is found here.

Our next chat topic is Where to go for support . We hope you can join us on Wednesday, August 13, 2014 at 9pm EST.

Mental Health Resources:

American Cancer Society Cancer Treatment & Survivorship Facts & Figures 2012-2013
http://www.cancer.org/acs/groups/content/@epidemiologysurveilance/documents/document/acspc-033876.pdf

Communications skills training for health care professionals working with people who have cancer - PubMed http://t.co/oiYAe6f8lN

NCI Fact Sheet Psychological Stress and Cancer

http://t.co/wCYyypOWen

Cancer Care Support Services

http://t.co/xBP3sug7MS

LiveSTRONG Survivor Care and Survivorship Notebook

http://t.co/RxdvHZxYNL

American Psychosocial Oncology Society