Clinical Trials Revisted - February Chat

We had such a informative chat about clinical trials in November that we decided to continue the discussion this month. Last night during the hour chat 44 participants logged over 400 tweets using the #gyncsm hashtag. We expanded our previous discussion of barriers to clinical trial participation and brainstormed ideas to increase patient participipation such as  " @rzeiger: T1: frame #clinicaltrials as treatment options, not just as "experiments"" and" @JFreemanDaily: T1: I'd like to see a new medical specialty, perhaps among nurses: "clinical trial navigator" at each hospital". We also discussed how trials are funded, designing clinical trials for rare diseases ( where the number diagnosed with the disease is low),  and the impact personalized medicine and genetics will have on trial design.

The complete transcript can be found here.

Next Chat: March 12, 2014 9pm EST
Topic: Caregivers/ Family Impact

Resources:

Daily aspirin use 'reduces ovarian cancer risk by 20%' 

http://www.medicalnewstoday.com/articles/272387.php

Doctors say too few cancer patients enroll in studies 

http://medicalxpress.com/news/2014-01-doctors-cancer-patients-enroll.html

Clinical trials: My next good chance 

http://scopeblog.stanford.edu/2012/04/17/clinical-trials-my-next-good-chance/

Three Ways to Improve Clinical Trials through Crowdsourcing 

http://connection.asco.org/Commentary/Article/ID/3762/Three-Ways-to-Improve-Clinical-Trials-through-Crowdsourcing.aspx

Why I’m in a Clinical Trial 

http://grayconnections.wordpress.com/2013/11/03/why-im-in-a-clinical-trial/

Affordable Care Act requires insurers to cover clinical trials 

http://www.oncologypractice.com/oncologyreport/news/top-news/single-view/affordable-care-act-requires-insurers-to-cover-clinical-trials/4f568787781a84c3af7c928afec97556.html

Meeting the Challenges to Hereditary Cancer Research 

http://facingourrisk.wordpress.com/2013/10/02/meeting-the-challenges-to-hereditary-cancer-research/

Clinical Trials 101 

http://www.bcsmcommunity.org/clinical-trials-101/

ASCO Answers: Clinical Trials Coverage Through the Affordable Care Act 

http://www.cancer.net/sites/cancer.net/files/clinical_trials_coverage_aca_fact_sheet.pdf?et_cid=33278464&et_rid=463568882&linkid=Clinical%20Trials%20Coverage%20Through%20the%20Affordable%20Care%20Act

Smart Patients Trial Finder 

https://www.smartpatients.com/trials

ClinicalTrials.gov Trial Finder 

http://clinicaltrials.gov/

ASCO Podcast "What are Clinical Trials?" 

http://www.cancer.net/blog/2014-02/what-are-clinical-trials

Making Clinical Trials More Efficient, Informative, and Effective 

http://www.mskcc.org/blog/making-clinical-trials-more-efficient-informative-and-effective

See you next month,

Dee
Co-moderator

November Topic- Clinical Trials

Our next #gyncsm chat will be held on Wednesday November 13, 2013 at 9pm EST. The topic of the night will be clinical trials.

Do you have questions about clinical trials?
How to find a clinical trial that is right for you?
Do you wonder why it takes so long for a drug to go from clinical trial to patient use?
Have you taken part in a clinical trial and want to share your experience with others.

If you answered yes to any of these questions then be sure to join us on the 13th.

Dee
co-moderator