Rare Disease Day Feb 29, 2020

"Rare Disease Day takes place every year on the last day of February (February 28 or February 29 in a leap year)—the rarest date on the calendar—to underscore the nature of rare diseases and what patients face.  It was established in Europe in 2008 by EURORDIS, the organization representing rare disease patients in Europe. Rare Disease Day is sponsored in the U.S. by the National Organization for Rare Disorders (NORD)®, a leading independent, non-profit organization committed to the identification, treatment, and cure of rare diseases."


Did you know that many gynecologic cancers are considered rare diseases in the US  by the NIH's Office of Rare Diseases Research? They are:

Ovarian

Uterine, including Sarcomas

Endometrial,

Fallopian tube,

GTD (Gestational Trophoblastic Disease),

Vaginal 

Vulvar 

For more information about Rare Disease Day in the U.S., go to www.rarediseaseday.us.  For information about global activities, go to www.rarediseaseday.org).  To search for information about rare diseases, visit NORD’s website, www.rarediseases.org.

Dee