Showing posts with label exercise. Show all posts
Showing posts with label exercise. Show all posts

Wednesday, February 12, 2020

February 12, 2020 Cancer Pre-hab and Rehab

On Wednesday, February 12, 2020 the #gyncsm community welcomed Dr. Timothy Marshall (@MarshallTF_PhD), Acting Executive Director of the Kean University, School of Physical Therapy in New Jersey, for our discussion on Cancer Pre-hab and Rehab. Thirteen participants join us for this important discussion. You may find a link to our complete transcript via @Symplur here  and analytics may be found here


T1: What is cancer pre-habilitation? Is prehab important for those having surgery?

  • P1: Cancer prehabiltiation are interventions delivered after receiving a cancer diagnosis but before treatment begins #gyncsm
  • P2: One aim of prehabilitation is to establish baseline levels of function and identify preexisting impairments or limitations, such as limited shoulder range of motion, which could be a problem later on in treatment #gyncsm
  • P3: A second aim of prehbailitation is to improve a patient’s muscle strength and endurance, flexibility and cardiopulmonary health before treatment begins #gyncsm
  • P4: This may be accomplished through an individualized exercise plan with the goal of reducing the incidence and severity of treatment-related side effects #gyncsm
  • P5: Prehabilitation may be important for someone who is about to undergo surgery because strengthening the involved muscles before surgery may enable them to better tolerate the trauma of surgery and improve the recovery process #gyncsm
  • P6: Strengthening the heart and lungs before surgery may help the patient’s heart and lungs better tolerate the surgery’s anesthesia and reduce post-operative complications and reduction in length of stay in the hospital #gyncsm
  • Prehabilitation such as discontinuation of smoking improves overall surgical outcomes. #gyncsm

T2: What is cancer rehabilitation? What is impairment driven rehabilitation?

  • P1: Cancer Rehabilitation refers to services delivered by healthcare professionals to treat physical, emotional, & cognitive problems that developed during cancer treatment #gyncsm
  • And can be provided concurrently with cancer treatment to mitigate side effects/toxicity. This can improve tolerance to therapy. #GYNCSM
  • P2: The goal of cancer rehabilitation is to reduce treatment-related side effects and improve function to promote independence. Physical problems appropriate for cancer rehab may include, but not limited to, pain, swelling, weakness and loss of strength, decrease flexibility, decreased inductance, lymphedema, fatigue, balance issues, sexual dysfunction, problems swallowing #gyncsm
  • A1: Often patients with a new cancer diagnosis want surgery as soon as possible, but in some cases improving fitness will improve surgical outcomes without compromising oncologic outcomes #CancerPrehab #GYNCSM
  • P3: Mobility problems may include, but not limited to, difficulties getting out of a chair or bed, navigating steps, walking, getting dressed and showering #gyncsm
  • P4.:Cognitive & emotion problems may include difficulty multitasking, difficulty thinking clearly, memory trouble, depression, anxiety #gyncsm

T3: When is the right time to ask about cancer rehab and who should I ask? Will insurance pay for this service?

  • T3: As early as possible in the pre-op appointment process. Likely with surgeon and oncologist. I think knowing what post-op life will look like is helpful mentally, emotionally, and also enables better planning. #GYNCSM
  • T3. Thats absolutely right; as soon as possible! Ask you Oncologist, a nurse, or any other healthcare provider managing your care #gyncsm
  • Agree. And usually insurance will cover this service. Some of what is learned can carry over into other phases of the cancer continuum. #GYNCSM
  • T3: Cancer Rehabilitation services provided by licensed healthcare professionals are commonly covered by insurance #gyncsm
  • T3: Services provided by exercise physiologist, which usually consist of exercise programs aimed at improving cardiovascular and muscular health and function are often NOT covered #gyncsm
  • T3: Insurance coverage for prehabilitation is limited, spotty at best, because it aims to prevent issues than treat ones that exist, which does seem counterintuitive, but that is where we are right now #gyncsm

T4: Where are cancer pre-hab and rehab services offered? How would a patient go about finding these services in their community?

  • T4: I believe @livestrong also has some programs at local Y's. #gyncsm
  • This is a great question. Because prehabilitation services are siloed into different departments, you can rarely find them in one convenient place. #gyncsm
  • T4 some @CancerSupportHQ communities offer programs after treatment too. #gyncsm
  • T4 There are also programs like this Cancer Thriving and Surviving program, like this one in NJ 

T5: How is it determined which exercise/other rehab program is best for each patient?

  • T5: This can be the tricky part. While the American College of Sports Medicine published updated Cancer Exercise Guidelines in 2019, what remains missing are tools for screening and referring to the appropriate rehabilitative service #gyncsm
  • T5: Speaking as a patient, I hope the care team would consider ability levels and help the patient find what works for them. I believe medical professionals should stay up on exercise trends and have good, reliable information on them! #GYNCSM
  • T5: I am involved in two projects, led by @NicoleStoutPT and @kcrov to develop tools for clinicians and patients to guide individuals to safe end effective rehabilitation and exercise programs to optimize treatment related side effects & improved functio #gyncsm
  • T5: Here are ACSM Cancer Exercise Guidelines https://journals.lww.com/acsm-msse/Fulltext/2019/11000/Exercise_Guidelines_for_Cancer_Survivors_.23.aspx
  • T5: However, and generally speaking, if treatment-related symptoms are severe, impairments are presenting and function is limited making it difficult to participate in activities or daily living or exercise, rehabilitation services may be most appropriate #gyncsm
  • T5: Supervised exercise may more appropriate when treatment-related side effects and impairments are mild with minimal mobility issues and functional concerns; but, please check with your Oncologist or primary healthcare provider before engaging in any services #gyncsm



T6: Can a patient who may have finished treatment a year or more ago do any exercise/rehab to help with the side effects of treatment?

  • Yes! We’ve seen good results with pelvic floor physical therapy.
  • T6: Yes! I heard a doctor at @MDAndersonNews speak about exercise helping cancer related fatigue, even years after treatment. I’m sure more benefits can come from a exercise/PT plan post treatment! #GYNCSM 
  • Yes post treatment exercise interventions can help reduce the severity of post-treatment side effects and help regain strength/stamina/endurance that may have been reduced during treatment #gyncsm
  • What also should not be lost or overlooked is the power of exercise for improving emotional health ( i.e. reducing anxiety, feelings of depression, etc) #gyncsm

Thank you Dr Marshall for taking the time to prep,  participate and share such valuable information with our community. 

There will be no #gyncsm chat in March. Save the date for our next chat Wednesday April 8, 2020 at 9pm ET on “Communication With your Healthcare Team and Asking for supportive care”.

See you in April!

Dee
Co-founder #gyncsm


Resources

@Cancerdotnet https://www.cancer.net/survivorship/rehabilitation/what-expect-cancer-rehabilitation

@JulieSilverMD Cancer Prehabilitation and Rehabilitation in Cancer Survivorship  http://www.nationalacademies.org/hmd/~/media/Files/Activity%20Files/Disease/NCPF/2017-JUL-24/Silver.pdf

Exercise Guidelines for Cancer Survivors  https://journals.lww.com/acsm-msse/Fulltext/2019/11000/Exercise_Guidelines_for_Cancer_Survivors_.23.aspx

Relaxation Resources https://www.loyola.edu/department/counseling-center/students/relaxation

Friday, February 7, 2020

Cancer Pre-Habilitation and Rehabilitation


Many people are familiar with rehabilitation after orthopedic surgery, other types of surgery, or long hospitalizations. But recently there has been more talk about pre-habilitation and rehabilitation surrounding cancer surgery and treatment.

On Wednesday, February 12, 2020 at 9pm ET, the #gyncsm community is pleased to welcome Dr. Timothy Marshall (@MarshallTF_PhD), Acting Executive Director of the Kean University, School of Physical Therapy in New Jersey, for our discussion on cancer pre-hab and rehab. Dr. Marshall is the author of a number of articles including Consensus- Building Efforts to Identify Best Tools for Screening and Assessment for Supportive Services in OncologyJournal of Disability and Rehabilitation. 

After defining pre-habilitation and rehabilitation, we will discuss how programs for patients are developed as well as who to speak with about these services using the following topic questions:
  • T1: What is cancer pre-habilitation? Is prehab important for those having surgery?
  • T2: What is cancer rehabilitation? What is impairment driven rehabilitation? 
  • T3: When is the right time to ask about cancer rehab and who should I ask? Will insurance pay for this service?
  • T4: Where are cancer pre-hab and rehab services offered? How would a patient go about finding these services in their community?
  • T5: How is it determined which exercise program is best for each patient?
  • T6: Can a patient who may have finished treatment a year or more ago do any exercise to help with the side effects of treatment?  

We hope you will join us and Dr. Marshall for this month's chat.

Dee
#gyncsm Co-founder

New to tweetchats?
Twitter Basics - 2019
Tweetchat Etiquette


Wednesday, August 8, 2018

"What is OK During Treatment" August 8, 2018 Chat


Tonight we had the chance to learn "What is OK during treatment?". We covered what is OK in terms of exercise, food, sexual intimacy and vitamins. We also allowed our participants to ask their own "Is it OK to..." question at the end of the chat. It was a pleasure for us to have Sangeeta Agarawal RN, Ms, CAS (@sanHelpsy), founder of Helpsy join us as a guest for this evening's chat and provide valuable information on a number of topics. 

You may find our transcript here and analytics here

We are happy to share a few highlights from tonight's chat below. Resources may be found at the bottom of this post. 


T1: Is it OK to… take supplements and vitamins during chemotherapy? How about during radiation therapy?
  • It is important to let your MD know any vitamins/supplements you are taking to ensure that they will not counteract your chemo
  • For example, antioxidants can counteract the effect of chemotherapy by clearing out the free radicals that damage the cancer
  • We recommend a simple multivitamin during treatment for cancer
  • You can find more information about herb supplements on NCCIH's HerbList App and Memorial Sloan Kettering's About Herbs app
  • Avoid taking high doses of antioxidant supplements during chemotherapy and radiation treatments as they may interfere with treatment
T2: Is it OK to… exercise during treatment? Are there specific exercises that are good to do after abdominal surgery?
  • We absolutely encourage exercise during treatment for cancer - it can help reduce stress and manage symptoms such as fatigue
  • Start with light exercises - slow with yoga, walking or stretching, work your way up to cycling, swimming, aerobic exercise once you feel ready. Talk to your oncologist and care team to design the right fitness routine for you
  • After abdominal surgery, it's important to avoid anything that strains your core/abdomen, stick w walking & low impact exercise
  • Supervised resistance training is good during and after treatment as it helps maintain muscle and bone mass
  • Try exercises like finger rolls, finger taps to help with neuropathy in your hands and fingers; exercises like calf raises, ankle circles, standing heel to toe for neuropathy in feet
  • There are even tutorials for seated yoga - you can get in your movement in many different ways.
  • Maintain a diary to record exercise sessions. Plan exercise for good and bad days, days when you experience intense symptoms
  • And exercise (appropriate for your current level of health) is excellent for your mental health, too
  • Exercise reduces fatigue at 40-50%, provides muscle strength, flexibility & general conditioning, control weight. Avoid swimming if on R/T chlorine irritate radiated skin as per reading
T3: Is it OK to… eat raw fruits and vegetables during treatment?
  • Try to include colorful fruits and vegetables, at least 2.5 cups every day, be sure to wash them thoroughly
  • Include citrus fruits like grapefruits and oranges and deep yellow and dark green vegetables
  • very imp to wash them thoroughly before eating. Check any warnings about breakout of disease
  • Vegetable sprouts such as mung bean, alfalfa, broccoli and radish should not be eaten raw, only consume pasteurized juices
  • Do not consume from outside - fresh salsa or salad dressings found in refrigerated sections of the grocery store; shelf-stable salsa and dressings are okay
  • In case of loss of appetite or desire to eat, talk to your health care team about nutrition consult so they can suggest recommendations to help improve taste and appetite
  • No need to avoid raw food completely! Avoid outside raw food. Avoid raw sushi
  • I also tell patients that beware of coffee and soda. You don't get proper hydration from those products.
T3 cont'd - What about soy and soy products?
  • Soy products contain phytoestrogens and not estrogen, soy contains essential amino acids, magnesium, potassium, fiber, and other vitamins. Try picking organic sources of soy
  • Soy dietary supplements may not be a healthy choice, consult your physician 
  • No harm in eating soy. Just ensure your body can digest it. Eat organic soy products.

T4: Is it OK to… have sexual relations while in treatment?
  • No reason to avoid sexual relations, it is not sexually transmitted or contagious and won't cause the cancer to return
  • You can absolutely have sex during treatment - there is no risk as long as you have the energy for it!
  • If you are in the mood or have energy for it! Go for it! Sex releases happy chemicals and builds closer bond with partner. 
  • Fatigue, pain, and discomfort after surgery could interfere with sexual relations, use vaginal lubricants to alleviate the pain
  • Radiation may cause vaginal swelling and bladder inflammation, sexual relations may be comfortable after a short healing period of about 2-4 weeks 
  • Cuddling, kissing and other forms of intimacy feel good too! :)
  • It's very important to bring up this topic and discuss any questions. Many times providers and patients both avoid it, but it's an important part of our life that needs discussion and clarity 
T5: We’ll now open the floor to allow our participants to ask other “Is it OK to...” questions. What haven't covered? 

Question: How about getting your flu shot? I think it is ok with chemo and radiation but they aren't sure about getting it with immunotherapy and other new kinds of treatment....
  • Usually it's given, but based on some treatments like immunotherapy - it may be held for a bit. Important to check with oncologist 

Question: Is it ok to be around kids or adults ( shingles ) who have had vaccines?
  • Most are safe, but when WBC is very low, better to avoid contact during days of nadir/lowest white blood cell count
Question: For nutrition and exercise... any different recommendations for immunotherapy vs. more standard treatments? Or is there not much studies on that yet?
  • so far, our recommendations for nutrition and exercise don't change for immunotherapy - we are still learning though
Thank you everyone who took part in our discussion. Remember if you are a patient or caregiver you may continue this discussion on the Smart Patients Platform https://www.smartpatients.com/gyncsm ). 

We hope you will join us for the next #gyncsm chat: Wednesday, September 12, 2018 where in addition to chatting about on We need support - Where do we find it?.  We will also be celebrating the #gyncsm Community's 5th Anniversary. 


See you in September. 

Dee
#gyncsm co-founder


RESOURCES

Taking vitamins/supplements:

Supplement Showdown : A Look at Vitamins and the Fight Against Cancer
https://www.curetoday.com/articles/supplement-showdown-a-look-at-vitamins-and-the-fight-against-cancer-

Dietary Supplements During Cancer Treatment: Yes or No?
https://health.usnews.com/health-news/patient-advice/articles/2015/07/01/dietary-supplements-during-cancer-treatment-yes-or-no

ACS @AmericanCancer website
https://www.cancer.org/treatment/treatments-and-side-effects/complementary-and-alternative-medicine/dietary-supplements.htm


Exercise:



pelvic exercises via @PelvicGuru1
 https://pelvicguru.com/2013/12/28/what-is-pelvic-physical-therapy-and-why-doesnt-everyone-know-about-it/

Eating raw fruits and vegetables:



Savor Health blog
http://savorhealth.com/blog/

Health Care System Eliminates Neutropenic Diet in Patients with Cancer with no Rise in Infection
https://www.curetoday.com/articles/health-system-eliminates-neutropenic-diet-in-patients-with-cancer-with-no-rise-in-infections

Eating soy: 

Tamar Rothenberg, RDN Is Soy Helpful or Harmful for Cancer Patients
https://www.tamarrothenbergrd.com/single-post/2018/01/10/Is-soy-helpful-or-harmful-for-cancer-survivors

@fredhutch Soy Is it Safe for Cancer Survivors
https://www.fredhutch.org/en/treatment/survivorship/survival-strategies/soy-safe-for-cancer-survivors.html

Having sexual relations during treatment:


Guide to Sexuality During & After Cancer Treatment
https://www.oncolink.org/support/sexuality-fertility/sexuality/women-s-guide-to-sexuality-during-after-cancer-treatment

Foundation For Womens Cancer
http://www.foundationforwomenscancer.org/wp-content/uploads/Sexuality-Brochure_Final.pdf

Mindy Schiffman, PhD. Sexuality and Intimacy after Cancer in this video
https://t.co/8bw9Lr79Zc

Be around children who are recently vaccinated: 

Eating cake and sugary foods:

Miscellaneous:
The Chemotherapy Survival Guide Authors Judith McKay, RN, OCN and Tamera Schachen, RN, OCN, MSN

Friday, August 3, 2018

August 8, 2018 What is OK during Treatment?


Over the past few years #gyncsm has heard questions from women about what they should or should not do during treatment. Such as, is it OK to...
  • exercise? 
  • eat raw fruits and vegetables? 
  • have sexual relations during treatment? 
  • take vitamins? 
  • eat soy or not? 
  • take supplements during chemotherapy? 
  • be around children who have recently been vaccinated? 
  • eat cake and other sugary food?
Even as treatments options are expanding for women diagnosed with a gynecologic cancer - from chemotherapy and radiation therapy to targeted therapies and immunotherapies - women still are looking for guidance in these areas.

Join us as this month as we welcome Sangeeta Agarawal RN, Ms, CAS (@sanHelpsy), founder of Helpsy "an integrative medicine platform for improving symptoms and health outcomes", as our guest. Sangeeta has long been involved with the Stanford MedicineX conferences and her mission is to empower people with the best quality of life by bringing together the best of eastern and western medicine and disseminating it using the power of technology. Sangeeta hosted a panel discussion in 2016 with the Oncology Nursing Society: Complementary & Alternative Medicine – A 360-degree View.

During the chat we'll be sharing information such as this National Comprehensive Cancer Network article on Exercise During Cancer Treatment and Memorial Sloan Kettering Cancer Center's article on Eating Well During and After Your Treatment.

We look forward to seeing you on Wednesday, August 8, 2018 at 9pmET (8pmCT, 6pmPT).

Dee
#gycnsm Co-Founder

Wednesday, November 11, 2015

November 11th : Nutrition and Exercise Chat

This month we had Brooke McMillan from LIVESTRONG (@LIVESTRONG) as well as William Greider (@DanaFarber), Stacy Kennedy (@stacykennedyrd) and Nancy Campbell (@exercise_cancer) from Dana Farber Cancer Center as our guests for this fact-filled and fast-paced discussion of Nutrition and Exercise. This chat's analytics were the best of any chat of 2015 with 88 participants, 823 tweets and over 18,000,000 impressions!

Topic questions and a very small sample of the responses are found below. You can also view a chat recap by @LIVESTRONG here. For additional information on recommended exercises, diet, foods to eat and foods to avoid we recommend reading the complete transcript - available here.

T1: What role does exercise play during treatment? How does it affect quality of life / outcomes? Did you exercise during treatment?

T2: Many gyn cancer patients undergo abdominal surgery. What exercises are recommended in recovery? long term?

T3: What are some resources for patients and survivors about exercise? What programs/exercises have helped you most?


T4: We periodically hear news about sugar and cancer...  Does sugar feed cancer? Should we avoid all sugar? Why do we need sugar?

T5: Are there specific foods GYN cancer patients should avoid? What's being discovered re: nutrition and gyn cancers? 
T6: For cancer survivors, is nutrition more about finding balance or it is more about cutting certain things altogether? Tips?


Please scroll down for Resources shared during the chat. And remember that you may continue our conversation about nutrition and exercise on Smart Patients (https://www.smartpatients.com/gyncsm).

We want to thank all participants in this chat both regulars (patients/survivors/healthcare providers) and new community members.  We look forward to having you join us on December 9, 2015 at 9pmET | 8pmCT | 6pm PT for the Looking Back and Looking Forward chat.

Dee
Co-Moderator



RESOURCES:

NUTRITION

Nutrition for the Person with Cancer - ACS https://t.co/ByOEMsuWvz

@DanaFarber : FREE nutrition and cancer app:  https://t.co/37ELiVMrYe 

@DanaFarber Myths about Food and Cancer Slideshow https://t.co/ykP7n5jdbm 

@DanaFarber "Does Sugar Feed Cancer"  https://t.co/kkzzaegxp5 


LiVES study: healthy lifestyle and PFS in #ovariancancer https://t.co/4kHGSaWc9R

Nutrition Recommendations During and After Treatment via @CancerDotNet https://t.co/Ngy9jhGIyB

ELLICSR cooking class : https://www.ellicsr.ca



@AICR infographic Making Time for Physical Activity: https://t.co/vNdlXhC42t

Rehab care plan via @livestrong https://t.co/tjpOnVDgVc

Dana Farber programs: https://t.co/WsRhJWRgIJ

US news and world report - exercise new RX for cancer pts https://t.co/KJ36gLRO6K

ACS Certified Cancer Exercise Trainer certification: https://t.co/qr44wEcOVk

ACS recommendations https://t.co/ucAjwIWChG

LIVESTRONG at the Y: https://t.co/okhxE7OqIe

@CancerSupportCm exercise classes

Exercising During Cancer Treatment--NCCN resources https://t.co/F1VkQNwycw

Physical Activity and the Cancer Patient--ACS resource https://t.co/XAIEEvLakj

Journal article : Physical activity and gynecologic cancer prevention https://t.co/Sw1N6kyPFX

Evidence based exercise program via @active_match  https://t.co/rkob5ZTpxO

Friday, November 6, 2015

Nutrition / Exercise November 11th Chat

On Wednesday November 11, 2015 at 9pmET / 8pmCT / 6pmPT the gyn cancer community will be chatting about Nutrition and Exercise. Research has shown the value of healthy eating and movement (exercise) in the survivorship and quality of life of cancer patients.



We are pleased that Dana-Farber Cancer Institute (@DanaFarber) and LIVESTRONG (@livestrong) will be joining us.

Dana-Farber recently shared a slide show on the Myths About Food and Cancer. We invite you to take a moment and view these slides.
 (http://www.slideshare.net/DanaFarber/myths-about-food-amp-cancer )



Since 2007 LIVESTRONG and the YMCA have partnered to provide a program for cancer survivors to promote physical activity after a cancer diagnosis. The 12 week program helps to improve the strength and quality of life of survivors. Learn more about their program here.

Our conversation will be guided by these topic questions: 

T1: What role does exercise play during treatment? How does it affect quality of life / outcomes? Did you exercise during treatment?

T2: Many gyn cancer patients undergo abdominal surgery. What exercises are recommended in recovery? long term?

T3: What are some resources for patients and survivors about exercise? What programs/exercises have helped you most?


T4: We periodically hear news about sugar and cancer...  Does sugar feed cancer? Should we avoid all sugar? Why do we need sugar?

T5: Are there specific foods GYN cancer patients should avoid? What's being discovered re: nutrition and gyn cancers?

T6: For cancer survivors, is nutrition more about finding balance or it is more about cutting certain things altogether? Tips?



We hope you can join us. See you on the 11th!

Dee
Co-Founder & Co-Moderator