Wednesday, November 22, 2017
We are Grateful
During this Thanksgiving Holiday we are especially grateful for our health moderators- Dr. Rick Boulay, Dr. Merry Markham, Dr. Shannon Westin and Dr. Ann Becker-Schutte as well as our supporters Dr Don Dizon, Dr Matthew Katz, SGO, and Iamcervior (Tamika Felder). Our community appreciates the sharing of your time and talents with all of us.
Dee and Christina
#gyncsm co-founders
Wednesday, November 8, 2017
Nov 8, 2017 #gyncsm Chat: Spotlight on Cancers of the Uterus
This month we put the spotlight on Cancers of the Uterus. We discussed risk factors, symptoms and treatments of endometrial / uterine cancers as well as uterine sarcomas.
We were pleased to have 24 participants join us including the Peach Society an organization devoted to raising awareness of endometrial cancer.
You may find a complete transcript here and more analytics here.
The following are some sample responses to out topic questions. You may find additional resources shared with the community at the end of the post.
T1: What are the risk factors for #endometrialcancer #uterinecancer? Do genetics play a role?
- Risk factors for uterine cancers from @cancerdotnet https://t.co/wptvJ7lIGE
- T1: uterine/endometrial cancer risks include: Age, obesity, reproductive history, hormone therapy, as well as genetics
- T1: #endometrialcancer is the malignancy most closely associated with obesity. Of course genetics #Lynch can play a role as well.
- About 3% of endometrial cancer is due to a hereditary cause, called Lynch syndrome. If you have a family history of endometrial and colon cancers,you may want to meet w/ a Genetic Counselor to learn more
- T1: some of the genetic links are Lynch syndrome (up to 60% risk), Cowden syndrome (up to 30% risk), and a small risk with PJS
- All of these factors increase systemic estrogen which is implicated in the most common types of #endometrial cancer.
T2: How are cancers of the uterus diagnosed? What are the signs and symptoms and, if diagnosed, did you experience these?
- T2: Any vaginal bleeding after menopause is uterine cancer until proven otherwise.
- T2 Via Canadian Cancer Society Signs and symptoms http://www.cancer.ca/en/cancer-information/cancer-type/uterine/signs-and-symptoms/?region=on&utm_content=buffere910b&utm_medium=social&utm_source=twitter.com&utm_campaign=buffer
- @OncLive: Dr. Haldorsen on the Role of Imaging in the Diagnosis of Endometrial Cancer http://www.onclive.com/conference-coverage/esgo-2017/dr-haldorsen-on-the-role-of-imaging-in-the-diagnosis-of-endometrial-cancer
- My main symptom included abnormal bleeding.
T3: What treatments are used for #endometrialcancer #uterinecancer? What are the common short and long term side effects?
- @CancerDotNet website : surgery/radiation/ chemotherapy https://www.cancer.net/cancer-types/uterine-cancer/treatment-options
- T3 Most are treated surgically with up to 50% receiving radiationa as well. 10-20% receive chemotherapy.
- T3: We discussed radiation oncology during our July 2017 #gyncsm chat - recap and resource links: http://gyncsm.blogspot.com/2017/06/radiation-oncology-what-is-it-when-is.html
- Post treatment side effects are related to the type and intensity of treatments used
- vaginal brachytherapy is a kind of radiation treatment
T4: How do uterine sarcomas differ from other endometrial/uterine cancers? What are the types? Differing symptoms and treatment?
- Sarcomas are more rare, and often more aggressive. They often start in the muscle tissue of the uterus
- T4: Uterine Carcinosarcoma (formerly called MMMT) - info: http://gcsproject.org/carcinosarcoma-facts/
- T4: Leiomyosarcoma is a rare type of uterine sarcoma.
- T4: Endometrial Stromal Sarcoma - Info: http://ess-sarcoma.com/
- T4 : Brittany Sullivan’s Story w/ Sarcoma https://connection.asco.org/magazine/society-member-news/conquering-sarcoma-clinical-research-doctor-and-her-patient-are-paving
T5: Are there any special support services for cancers of the uterus? Where can people learn more?
- T5: For all the gynecologic cancers, @GYNCancer (The Foundation for Women's Cancer (FWC)) had great guides and resources.
- T5: Resource | Foundation for Women's Cancer (2017): Endometrial Cancer - Your Guide http://www.foundationforwomenscancer.org/wp-content/uploads/FWC-Endometrial-Cancer-Your-Guide-website.pdf
- For support some great organizations like @CancerSupportHQ and for one on one support @CancerHopeNet are two I would recommend.
- Short overview of uterine cancer via @gyncancer http://www.foundationforwomenscancer.org/category/blog/uterine-cancer/
- @Peach_Society: You can get more information at http://www.peachsociety.net/
Please join us next month on Wednesday, December 13, 2017 (9pm ET/ 8pm CT / 6PM PT) for a chat on I've Survived - Dealing with Side Effects and Other Losses
Wish all the members of our community a very Happy Thanksgiving!
See you in December.
Dee
Co-founder #gyncsm
RESOURCES
@MayoGynecology video obesity and endometrial cancer https://t.co/rJcT0ryuRL
Peach Outreach symptom cards, visit: http://peachoutreach.com/symptomcards/
Imaging and endometrial cancer diagnosis http://www.onclive.com/conference-coverage/esgo-2017/dr-haldorsen-on-the-role-of-imaging-in-the-diagnosis-of-endometrial-cancer
Friday, November 3, 2017
Nov #gyncsm Chat: Spotlight on Cancers of the Uterus
This month we will be putting the spotlight on Cancers of the Uterus or Cancers of the Womb as it is called in the United Kingdom. We will discuss risk factors, symptoms and treatments of endometrial / uterine cancers. We will also discuss uterine sarcomas and how they differ from other cancers in presentation and treatment.
Guiding our discussion will be the following Topic Questions:
T1: What are the risk factors for #endometrialcancer #uterinecancer? Do genetics play a role?You will find helpful information on this month's topic in a booklet produced by the NCI What You Need to Know About - Cancer of the Uterus.
T2: How are cancers of the uterus diagnosed? What are the signs and symptoms and, if diagnosed, did you experience these?
T3: What treatments are used for #endometrialcancer #uterinecancer? What are the common short and long term side effects?
T4: How do uterine sarcomas differ from other endometrial/uterine cancers? What are the types? Differing symptoms and treatment?
T5: Are there any special support services for cancers of the uterus? Where can people learn more?
We look forward to you joining us on Wednesday, November 8, 2017 at 9pm ET (8pm CT, 6pm PT).
Dee
#gyncsm Co-founder
Related Chats:
Radiation Oncology - What is is? When is it used? 2017
You never heard of Primary Peritoneal Cancer and Gestational Trophoblastic Disease? 2017
Gyn Cancer Awareness Month and Spotlight: Uterine and Endometrial Cancers 2015
Wednesday, October 11, 2017
Oct 11, 2017 #clinicaltrials - How have they changed.
We were very pleased to have ASCO, American Society of Clinical Oncology (@ASCO), join us to discuss the importance of clinical trials and their TAPUR Study as part of our chat on #clinicaltrials. This month's chat participation number was our 4th largest ever with fifty-one participants.
You can find the complete transcript here and analytics here.
To provide you with an idea of what our chat discussion was like, below you will find a sampling of the answers to our questions.
T2: What is TAPUR? Why did @ASCO develop this trial? Who can participate? What makes TAPUR different from other trials?
T3: What are Patient Reported Outcomes (PRO)? What progress have you seen on ensuring that trials meet patients' needs/interests?
T4a: Have you been involved in a #clinicaltrials?
T4b: If yes, what benefits or drawbacks did you experience? If no, what were some of the reasons? Were trials offered to you?
T5: Per @SGO_org, there is a crisis in gyn cancer trials. How can #gyncsm support research and encourage participation in #clinicaltrials?
We appreciate the insights and knowledge of those who participated in tonight's chat. And we hope as a community we will continue to educate women and their caregivers about clinical trials.
Video | Understanding Gynecologic Cancer Clinical Trials from @GYNcancer
https://www.youtube.com/watch?v=UFGb8nQkE8c&feature=youtu.be
Understanding Clinical Trials - Your Guide from @GYNcancer
http://www.foundationforwomenscancer.org/wp-content/uploads/FWC-Clinical-Trials-Your-Guide-Brochure-web_updated.pdf
Diversity in Trials
http://www.cancertodaymag.org/Summer2017/Pages/A-New-Look-for-Clinical-Trials-Diversity.aspx
ASCO guide: new trial designs & precision medicine
http://www.asco.org/research-progress/clinical-trials/clinical-trial-resources/clinical-trial-design-and-methodology
ASCO Broadening Trial Eligibility Criteria to Make Clinical Trials More Representative
http://www.asco.org/research-progress/clinical-trials/clinical-trial-eligibility-criteria
Designing trials for adolescents
http://www.cancertodaymag.org/Summer2017/Pages/More-Options-for-Adolescents-in-Clinical-Trials.aspx
NCI-MATCH info
https://www.cancer.gov/about-cancer/treatment/clinical-trials/nci-supported/nci-match
TAPUR
https://www.tapur.org/
About TAPUR on @cancerdotnet
http://www.cancer.net/navigating-cancer-care/how-cancer-treated/clinical-trials/what-tapur-study
The National Quality Forum report on PROs
https://www.qualityforum.org/Projects/n-r/Patient-Reported_Outcomes/Patient-Reported_Outcomes.aspx
Patient Safety in Clinical Trials | Video by @theNCI
https://www.youtube.com/watch?v=y7TDwbrD7GQ&feature=youtu.be
Patients’ willingness to participate in clinical trials
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4706669/
Physician and Patient Participation in Cancer Clinical Trials
https://www.ncbi.nlm.nih.gov/books/NBK220370/
You can find the complete transcript here and analytics here.
To provide you with an idea of what our chat discussion was like, below you will find a sampling of the answers to our questions.
T1: What role do #clinicaltrials play in cancer treatment advances?
What are some of the key trial design changes in the past 5 yrs?
- T1: #Clinicaltrials are key to helping us better prevent & detect cancer, find new & better treatments, & manage side effects
- T1: New trial designs let us study multiple cancers/treatments at the same time & learn which therapy works best for each patient
- T1: It's important for patients to understand that #clinicaltrials are NOT the treatment of last resort.
- T1: New trial design: "basket trial" offer single treatment for all cancers with specific biomarker (like ROS1 fusions)
- T1: "Umbrella" trials have multiple therapies for one type of cancer (ie ovarian) - the arm may be chosen based on molecular testing
- Immunotherapy is definitely trending as a treatment for many types of cancer and it is only in its infancy. Exciting!
- Another non- randomized Trial is the precision medicine trial know as NCI-MATCH Trial
T2: What is TAPUR? Why did @ASCO develop this trial? Who can participate? What makes TAPUR different from other trials?
- T2: #TAPUR stands for the Targeted Agent and Profiling Utilization Registry Study and is our first clinical trial ever
- T2: The study matches pts w/ targeted therapies based on tumors’ specific genomic profiles
- http://www.cancer.net/navigating-cancer-care/how-cancer-treated/clinical-trials/what-tapur-study
- T2: Our CMO @rschilsky and Past Pres. @DrJulieVose explain why ASCO developed the TAPUR study in this video: https://t.co/j9qEuIY3tY
- T2: TAPUR is for pts >12yo w/ adv. cancer & at least 1 genomic alteration targetable by a study drug. More: https://www.tapur.org/patients
- T2: TAPUR is designed to include a broader patient population than most trials & to mirror real-world clinical practice
- T2: Check out the study website https://www.tapur.org/ & FAQs https://www.tapur.org/node/31 for more details!
- T2: TAPUR is an option for patients to access targeted drug that is approved for a different cancer than theirs
- T2: For example, patient with ROS1+ cancer that started in colon can get ROS1 targeted drug approved for lung cancer
T3: What are Patient Reported Outcomes (PRO)? What progress have you seen on ensuring that trials meet patients' needs/interests?
- T3: PROs are anything reported directly by the patient, like symptoms or emotions. They reflect how patients feel & function
- T3: PROS - patient reported outcomes help determine the impact novel treatments in a clinical trial have on #QOL (quality of life)
- T3: More trials are incorporating PROs so outcomes can be measured against pts’ needs/interests https://am.asco.org/daily-news/rise-patient-reported-outcomes-oncology
- T3: Research has shown that when patients self-report symptoms, they have better outcomes https://t.co/cjl8npOxVE
- Self-reporting symptoms can serve to make patients feel more involved and they may be more open to sharing symptoms. This is great!
- Critically important to include & capture. Preferred Dr outcomes vs patient outcomes sometimes don't align
T4a: Have you been involved in a #clinicaltrials?
- T4 my brother was in a clinical trial for stage 4 colon cancer. It looked at EGFR+ drugs +/- avastin
- T4a: My cancer progressed after two different lines of chemo/rads. Targeted therapy clinical trial had me NED at first scan!
- I've participated in some interview studies and am signing up for PROMPT re: genetic variants related to cancer.
- I was in a phase 1 on initial DX for OC. I also have - or rather my tumor tissue has been in a few other trials
- I have been involved as an investigator in #clinicaltrials for years! Have never participated in one - but I would…
- T4a gathering tests/labs to begin immune therapy trial next week PPC 3c
T4b: If yes, what benefits or drawbacks did you experience? If no, what were some of the reasons? Were trials offered to you?
- Drawbacks of trials: hard to find "best" trial for you, may require travel & time away from family, varying level of risk
- T1b: Benefits of trials: receive AT LEAST standard of care, see top cancer docs, might help future patients as well
- my brother did well on trial, extended his life. trial helped clarify treatment. Brother also saw altruistic benefits
- T4b not offered. Have asked onc about using AI to prevent recurrence. Answer: not studied. Me: R U studying? Ans: no.
- A lot of doctors mention only the #clinicaltrials at their hospital.
- Patient communities continue to be one of the best places to find out about trials. There are groups trying to make it easier
- Because of #sarcoma & gynonc silos, women with sarcoma may not hear about trials run by different docs.
T5: Per @SGO_org, there is a crisis in gyn cancer trials. How can #gyncsm support research and encourage participation in #clinicaltrials?
- T5: #gyncsm can continue great advocacy work and spread the word about the benefit of #clinicaltrials
- T5: Educate yourself & share info with others! Online patient communities & chats like this one are a great start
- T5: Find ways to help more #gyncsm patients get molecular testing and join "basket trials" for any solid tumor type.
- Resource | Gyn Trials Crisis Fact Sheet from @SGO_org https://www.sgo.org/wp-content/uploads/2012/09/SGO-Clinical-Trial-Crisis-FINAL.pdf
- T5 @CancerDotNet has great resources on clinical trials: http://www.cancer.net/research-and-advocacy/clinical-trials
- T5: Call your congress person.
- T5: Contact your lawmakers & urge them to support research by increasing funding for @NIH and @theNCI
- T5: Consider having your #gyncsm tumor undergo broad genomic testing to help researchers identify targetable genomic drivers.
- @ClearityFnd can help with tumor profiling for #ovariancancer
- @SGO_org working on a #gyncsm specific #clinicaltrial search engine that we hope will simplify the process
We appreciate the insights and knowledge of those who participated in tonight's chat. And we hope as a community we will continue to educate women and their caregivers about clinical trials.
Additional resources from the chat are shared below.
We hope you will join us on November 8, 2017 at 9:00pm EST for our chat on Endometrial and Uterine Cancers. See you then.
Dee
#gyncsm Co-founder
RESOURCES:
Video | Understanding Gynecologic Cancer Clinical Trials from @GYNcancer
https://www.youtube.com/watch?v=UFGb8nQkE8c&feature=youtu.be
Understanding Clinical Trials - Your Guide from @GYNcancer
http://www.foundationforwomenscancer.org/wp-content/uploads/FWC-Clinical-Trials-Your-Guide-Brochure-web_updated.pdf
Diversity in Trials
http://www.cancertodaymag.org/Summer2017/Pages/A-New-Look-for-Clinical-Trials-Diversity.aspx
ASCO guide: new trial designs & precision medicine
http://www.asco.org/research-progress/clinical-trials/clinical-trial-resources/clinical-trial-design-and-methodology
ASCO Broadening Trial Eligibility Criteria to Make Clinical Trials More Representative
http://www.asco.org/research-progress/clinical-trials/clinical-trial-eligibility-criteria
Designing trials for adolescents
http://www.cancertodaymag.org/Summer2017/Pages/More-Options-for-Adolescents-in-Clinical-Trials.aspx
NCI-MATCH info
https://www.cancer.gov/about-cancer/treatment/clinical-trials/nci-supported/nci-match
TAPUR
https://www.tapur.org/
About TAPUR on @cancerdotnet
http://www.cancer.net/navigating-cancer-care/how-cancer-treated/clinical-trials/what-tapur-study
The National Quality Forum report on PROs
https://www.qualityforum.org/Projects/n-r/Patient-Reported_Outcomes/Patient-Reported_Outcomes.aspx
Patient Safety in Clinical Trials | Video by @theNCI
https://www.youtube.com/watch?v=y7TDwbrD7GQ&feature=youtu.be
Patients’ willingness to participate in clinical trials
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4706669/
Physician and Patient Participation in Cancer Clinical Trials
https://www.ncbi.nlm.nih.gov/books/NBK220370/
Friday, October 6, 2017
Oct 2017 Chat: #clinicaltrials - How Have They Changed
While we have mentioned clinical trials in a few of our recent chats, we have not devoted an entire chat to the topic since 2014. On Wednesday October 11, 2017 at 9pm ET (8pm CT, 6pmPT) we will chat about "#clinicaltrials - How Have They Changed".
We are happy that ASCO TAPUR Study Administrators will be joining us to discuss the TAPUR Study and how it differs from traditional trials.
Our topic questions are:
or view this video provided by the Foundation for Women's Cancer:
Please also see this fact sheet on the Gyn Cancer Clinical Trials Crisis:
We look forward to seeing you on Wednesday the 11th at 9pmET!
Dee
Co-Founder #gyncsm
Related #gyncsm Chats
Clinical Trials Part 1 - 11/2013
Clinical Trials Part 2 - 2/2014
We are happy that ASCO TAPUR Study Administrators will be joining us to discuss the TAPUR Study and how it differs from traditional trials.
Our topic questions are:
T1: What role do #clinicaltrials play in cancer treatment advances?
What are some of the key trial design changes in the past 5 yrs?
T2: What is TAPUR? Why did @ASCO develop this trial? Who can participate? What makes TAPUR different from other trials?
T3:
What are Patient Reported Outcomes (PRO)? What progress have you seen
on ensuring that trials meet patients' needs/interests?
T4a: Have you been involved in a #clinicaltrial?
T4b: If yes, what benefits or drawbacks did you experience? If no, what were some of the reasons? Were trials offered to you?
T5:
Per @SGO_org, there is a crisis in gyn cancer trials. How can #gyncsm
support research and encourage participation in #clinicaltrials?
In preparation for the chat, you can review this Clinical Trials : Your Guide brochure:
http://www.foundationforwomenscancer.org/wp-content/uploads/FWC-Clinical-Trials-Your-Guide-Brochure-web_updated.pdf
http://www.foundationforwomenscancer.org/wp-content/uploads/FWC-Clinical-Trials-Your-Guide-Brochure-web_updated.pdf
or view this video provided by the Foundation for Women's Cancer:
Please also see this fact sheet on the Gyn Cancer Clinical Trials Crisis:
We look forward to seeing you on Wednesday the 11th at 9pmET!
Dee
Co-Founder #gyncsm
Related #gyncsm Chats
Clinical Trials Part 1 - 11/2013
Clinical Trials Part 2 - 2/2014
Wednesday, September 13, 2017
Sept. 13, 2017 A Balanced Life - advocacy, survivorship, new normal
As we celebrate our 4th Anniversary, we want to thank everyone who has participated in or followed our chats and all who have supported us by using the #gyncsm hashtag to share information of value to our community.
This Gynecologic Cancer Awareness Month our topic was finding a Balanced Life after a cancer-related diagnosis. We focused on survivorship, a new normal and advocacy.
We were joined by health care providers, survivors and caregivers to answer these questions:
T1: During treatment, what adjustments did you make (nutrition/exercise/work) to help you stay balanced physically and emotionally?
- for emotional support I reached out to @cancerHopeNet
- The most important thing to do during Rx is practice self care - whatever that means for you - exercise, food, time
- I think it is important to remember to go easy on yourself. We can be our own worst critics. Remind self it is ok to falter.
- My experiences as a doc are that most patients attend to the treatment needs and have little energy to do anything further
- I was a hard core exerciser before. I had to learn to be easier on myself. I did a lot of beginner/gentle yoga. It helped
- People expect you to "be over it" and move on as if nothing happened.
- I felt like a rudderless ship. Had no control of my life for so long, then see you in a month
- still do same stuff;work,volunteer, make lunch and dinner, son's sports, friends but I don't feel the same. Cancer is always there
- People expect you to "be over it" and move on as if nothing happened.
- The new normal is the development of new habits patterns and thoughts as a result of the cancer journey
- I think there's so much pressure on patients to have cancer change them in some profound way and when it doesn't they're lost
- I think that "new normal" is an interesting phrase. For some it is helpful, and for others, it draws negative feelings.
- the term new normal I guess acknowledges that there has been a turning point. An anchor in your own timeline.
- My new normal as a caregiver is a recognition of the fragility of life and how a diagnosis can change absolutely everything
- I often encourage clients to find whatever version of "new normal" helps them acknowledge that cancer creates permanent change
- I'm in denial with a touch of overwhelmed in making preventative treatment decisions. So still in the thick of it and unclear
- And even if clients can return to work, exercise, other activities, there is always the knowledge of vulnerability.
- And mentally people have completely changed. The old normal is no longer applicable .Cancer is a period of accelerated change
- I started sharing my family's cancer story when we started up #gyncsm. So, about 4 years ago
- I took part in @livestrong summit 6 mo after chemo.Learned & was motivated to advocate for myself and others
- This awareness month seems less active than last year... I've been doing a tweet a day from me and another from @gyncsm
- I believe breaks are critical. We need time to recharge, to do what we love, to remember our dx is not our identity.
- As a doctor, I get here often - need to take breaks - coach baseball/softball, exercise, take a weekend off from everything
- Absolutely need to step back,For me esp after #GCAM - so much going on ( walks, events) and remembering those lives lost
- I would love to. But I can't. I just can't. Survivorship leaks from every pore.
- It is tough to stay in a constant advocacy mode. Esp. when a string of advocates pass away. Need time to recharge
- So appreciative of long-term survivors who stay active in patient communities IRL and online. Also understand when they go in/out.
You may find a complete transcript here, analytics here and resources below.
You can continue tonight's discussion, A Balance Life, on Smart Patients at
https://www.smartpatients.com/partners/gyncsm
We hope you will join us next month on Wednesday October 11, 2017 at 9pm for our chat - #Clinical Trials - How have they changed?.
See you then.
Dee
#gyncsm co-moderator
RESOURCES
"Survivorship is Not a Phase" #newnormal http://theendoflinearity.com/survivorship-is-not-a-phase-part-two/
New Normal Adjustment after Cancer http://awomanshealth.com/new-normal-adjustment-after-cancer/
The power of vulnerability | Brené Brown https://www.youtube.com/watch?v=iCvmsMzlF7o&feature=youtu.be
@afreshchapter started a patient advocate retreat called Refresh
via @TealDivaNC - Vulnerable http://www.tealdivanc.org/single-post/2017/09/02/vul%C2%B7ner%C2%B7a%C2%B7ble-%CB%88v%C9%99ln%C9%99r%C9%99b%C9%99l
via #MedX: 5 things I tell people who think they can't be advocates https://medicinex.stanford.edu/2017/09/03/5-things-i-tell-people-who-think-they-cant-be-advocates/
A bit of Advocate in all of us https://www.sharecancersupport.org/2017/01/a-bit-of-advocate-in-all-of-us/
What happens next #ovca https://targetovariancancer.org.uk/guides/what-happens-next
Ovarian Cancer Survivors’ Experiences of Self-Advocacy: A Focus Group Study @TLHagan https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4021021/
Wednesday, September 6, 2017
September #gyncsm Chat: A Balanced Life - advocacy, survivorship, new normal
This month we are also excited to be celebrating our anniversary. A special thanks to our moderators Drs. Markham, Westin, Boulay and Becker-Shutte and to the OCRFA, SGO and Foundation for Women's Cancer for your support - without which we would not be able to continue serving those whose lives have been impacted by gynecologic cancers.
Here are the topic questions that will guide our hour long chat on finding a balanced life following diagnosis:
T1: During treatment, what adjustments did you make (nutrition/exercise/work) to help you stay balanced physically and emotionally?We hope you can join us on September 13, 2017 at 9pmET (8CT/6PT) and share your experience with finding a "balanced life" with all of us.
T2: When you finished first line treatment, how did you feel? What things did you go back to doing and what stayed changed?
T3a: What does the term “new normal” mean to you?
T3b: What does your own new normal currently look like? Where are you in your search for balance?
T4: How soon after your diagnosis did you start volunteering and/or sharing your story? What are you involved in for awareness month?
T5: Do you ever feel the need to take a break from all things cancer? What do you do and where do you turn when you reach that point?
Dee
#gyncsm moderator
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